Sharing my mourning journey as my family learns to live a new normal after the death of my 19 y.o. son in an auto accident on 10/12/08.

Archive for the ‘maternal instinct’ Category

What I Want For Mother’s Day

Dear Jordan,

It is Mother’s Day again. I look at your brother and sisters and am reassured that my capacity for love didn’t wither when you died. Your death drilled down to my core and I wondered if I’d ever trust the Universe with another of my children. I didn’t have to wonder long, my love for you and your siblings fueled my maternal heart. My resolve to be present and let anyone who asked know that I will always be the mom of 4 crystallized my path of healing. I see you in Merrick, Lindsay and Kendall. Your humor, smile, stubbornness, quick wit and sense of fairness plays out in glimpses that let me know you are never too far from any of our thoughts.

This morning there was a soft knock on the bedroom door and Kendall stepped in with a mug of coffee and a hug for me. Merrick sprang from his room when he heard me in the hallway and enveloped me in a hug brightened by his smile and his deep voice, “Happy Mother’s Day Mama.” Lindsay was downstairs making breakfast and smiled and hugged me when she saw me. When we sat down to breakfast your dad said grace as we all held hands. Looking around the table I felt a mixture of gratitude, nostalgia and melancholy. Where has the time gone? No matter how much time has passed, you are with us, a part of our family circle. “Amen,” rang out around the table, and softly, just for me, I said, “Jordan, Merrick, Lindsay, Kendall.” As we released each other’s hands, my hand was still reaching for yours. I imagined bringing your hand to my face and feeling your knuckles graze my cheek before I planted a quick kiss. I’ve had 8 mother’s days since you died. The dread of the early years has softened. The day as are the days leading up to it bittersweet and I’m learning to embrace and not be surprised that joy, sadness and longing can reside in my heart compatibly, if I let them.

I’m still learning how to comfort the maternal part of me that surfaces at times and is primal in its insistence that the only way it will be quieted is by your physical presence. The need to hear your voice, hug you and find some forgotten sign of life from you are overpowering. In the early days and months after you died I would hold your pillow, inhaling any remnants of your smell until my heartache subsided. The pillow lost your scent years ago and I’m okay. I’ve memorized your essence, it’s decoded and stored with my own DNA. I carry you with me and find ways to sit with you hold you and hear your voice. I dream of you, sitting with us at the table, listening intently as your voice dances with excitement at seeing old friends at your 10- year high school reunion. Sometimes, there’s a baby, your child, my grandchild, perched on my lap as we laugh and talk, regaling your wife with Jordan stories. I imagine the rhythm of our table talk injected with the energy of new life and new memories.

For this Mother’s Day, I’ll sit under your tree, knowing that the shade is my hug from you. When the leaves rustle I’ll know it’s your voice. I’ll look up through the maze of branches, and the kaleidoscope made by sunlight shining through the leaves will be the brightness of your smile. Your tree stands tall just as you did. It towers over me and I marvel at how it’s grown. I’ll bend down at the base and pick up a hand full of soil. My thoughts as always will drift back to the day I rode my bike to the young tree when it was first dedicated to the park and pulled the Ziploc bag that held some of your ashes from my pocket. I mixed them with the soil determined to have you represented in every branch. Your tree is one of the places I find you, our sacred space. I will always be your mother; you will always be my son. And this Mother’s day like the past 7, your tree is my reminder of how the seasons change and life continues. Spring always comes and we keep going.

Love,

Mama

 

 

Thinking of You

“I’ll be thinking of you, thinking of you

Though we’re far apart, you’re in my heart

And there you’ll always stay

Till we meet again someday

I’ll be thinking of you”

Andrae Crouch

Jordan is always on my mind, always. Some days the comfort I get from feeling his presence in my heart and surroundings is like light and warmth all at the same time. I freely talk to him telling him about my days and asking him to watch over and encourage his siblings. I remember silly things he’s done and am able to laugh, feeling his laughter too.

On other days, thinking of him makes me wish that there were some way that he could come back, that a horrible mistake has been made and he’ll find a way to return. I’ve even gone so far as to chastise myself for having him cremated. “He doesn’t have a body to come back to, what were we thinking?”

Still more, are the days when I’m so angry not only at the accident that caused his death or at his friends who lived, but at Jordan. A litany of  “Why” outbursts cascade through my mind as I lash out at him for not surviving.

  • Why were you sitting in the rear passenger seat?
  • Why did you fall asleep?
  • Why didn’t you stay in NY instead of tagging along to Baltimore?
  • Why didn’t you stick with friends your own age?
  • Why didn’t you listen to your dad and I and stay vigilant when you’re riding in the car on long trips?
  • Why didn’t you tell me how tired everyone was on the day you were going back to school?

And then the anger fixed on Jordan turns to me.

  • Why didn’t I listen to my gut and call you to check-in while you were on the road?
  • Why didn’t I buy you a bus ticket for NY instead of allowing you to drive with your friends?
  • Why didn’t I get angry when you changed plans and off-handedly told me about it in a text message?
  • Why did I let you make your own choices and decisions?

The last why is the conundrum that threatens me most. I’m raising my surviving children to be just as independent and to live fully the way Mark and I taught their brother. Am I doing right by them? I pray they will live long, happy lives. I’m proud of them for their resilience and that they continue to embrace life with exuberance and hope. The love and pride I have for my children doesn’t change the nagging thoughts that undermine my beliefs in what being a good mother means.  It still stings when people tell me I’m a good mom. Sometimes all I can give in response is a nod as I lower my head. They’re saying, “Good mom.” I’m thinking, “Cautionary tale.”

My oldest boy is gone and as hard as I try I can’t completely shake the feeling that I should have been able to save him. Yes, it was an accident that took his life but there are so many intersections of time where things could have been different. A bus ticket, a phone call, saying, “No, you can’t go,” would have changed the trajectory of my family’s life. I know his death can’t be undone and facing that reality is a part of who I am now. Yes, I think about my son everyday and today happens to be a “Why” day.

Always Mom of 4

October Snow and Long Distance Parenting

My newly minted freshman in college is a part of the October snowstorm that hit the northeast this past weekend. The town where Merrick’s school is located lost power on Saturday and is still in the dark. Merrick called home Saturday night to update us and we advised him to conserve his phone’s battery even as we peppered him with questions.

“Do you have a flashlight?”

“Um, no.”

“Are you sure? How could we have bought half of Target and not bought a flashlight?”

“I don’t know but I don’t have one.”

“Look in the bottom drawer of your desk. Your dad put tools and things like that in there when we were helping you unpack.”

“Alright Mom, I’ll check but I don’t think I have one.”

Turning to my husband Mark I say, “How could we not buy him a flashlight. That should have been one of the main things on the list.”

“Mom, I’ve got a wrench, no flashlight.”

“Okay, okay. Well hopefully the power will be back on when you wake up tomorrow.”

“It’s okay right now. The generator is lighting the hallway and the bathroom so it’s not too bad.”

“Just be careful okay.”
“I am.”

We said our goodbyes and as Merrick went off to make a snowman with friends and then play his saxophone in a band thrown together for the occasion, I tossed and turned waiting for morning. Who could imagine such a snowstorm in October? The month was so close to being over and for my family it is a month fraught with emotions. We marked the 3rd anniversary of our oldest son Jordan’s death on the 12th and made our way through the 18th the date of his memorial service and then celebrated and consoled Merrick on the 20th the day he turned 19, the same age Jordan was when he died. October already held enough upheaval and Merrick was just starting to find a rhythm again and not be so weighted down with grief. In the days right after his birthday he’d said things like, “Why did Jordan have to die a week before my birthday? And “Jordan died when he was 19, I’ve got to make it through this year.”

Struggling for comforting words I gave him what I could, “ I know your birthday is hard now. It may never feel the way it did before Jordan died. But that doesn’t mean that one day you won’t feel pockets of joy. My prayer for you is that as time goes on those pockets will grow deeper. We’re here for you and we will always celebrate the day you were born. That day gave us you. You’re not Jordan and what happened to him was an accident. Each day, every year is to be lived, not gotten through. Please try to take in what I’m saying.”

“I’ll try.”

Then the tears came and I sat cradling the phone making sure he knew I was there but allowing him to vet every emotion coursing through him as he sobbed for all he’s lost and all the longing he has for his brother. The week wore on and I’d talk to him every other day, “Just checking in,” were my words when I couldn’t keep myself from calling. I didn’t want him to feel like I was worrying too much about him but I was, and the only thing that made me able to cope was hearing his voice.

*

On Sunday morning after the storm, Mark and I were both awake by 7:30 and Mark immediately reached for his Ipad to check the outages on the East Coast. Merrick’s town still had no power. I was grateful he was still asleep and hoped that maybe by the time he woke up the power would be back. Later that morning we got a call from Merrick from the cellphone of one of his friend’s saying that the campus had run out of food and they were strongly encouraging students to evacuate the campus. The administration suggested they go to a neighboring school that did not lose power or home if they lived close enough. Merrick then went on a rant about AT&T and how he had no “bars” and the only people that did were those with Verizon and T-Mobile.

“Dad we’ve got to change cellphone carriers. This is crazy.”

He ranted about his phone but we heard the panic in his voice and his need for us to help him figure out what to do. He was weary from October. We had to decide what was the best option so that he could feel safe. Realizing that soon we wouldn’t have any connection with him if his friends all scattered because some were going to Boston to stay with friends and some were going to neighboring schools, we had to help our kid figure out the best place for him. Thankfully he knew us well enough that he didn’t impulsively just go someplace without letting us know.

Jordan’s trip during his Fall break from college took a detour from New York to Baltimore which he texted us about as he rode to Baltimore. I never got a chance to tell him, “That wasn’t the plan,” or “No, stay in NY.” I wonder if I could have kept him safe, kept him alive. On the drive back, just 20 minutes from campus is where the car accident occurred and he was pronounced dead at the scene. He was riding with 3 friends when the driver fell asleep and the car careened off the interstate falling 40 feet onto the service road below. As much as we want Merrick to have freedom as a college student and be responsible for making decisions, Jordan’s death has cast a veil of vigilance over the rest of our children. Merrick choosing the same small town as his brother to go to school has heightened our anxiety.

As we scrambled to figure out where Merrick should go until he could return to campus he uttered, “I could carpool with some friends to Boston.”

The word, “No,” was out of my mouth as Merrick finished his sentence. “I don’t want you carpooling. We’ll figure out how to get you someplace safe.”

Before I could speak further Merrick jumped in, “Okay Mom, I know. I won’t.”

This wasn’t the first time that riding with friends had come up with Merrick. As I reminded him to make his reservation early for the airport shuttle for Thanksgiving his response was, “My friend and I were thinking about grabbing a ride with some other people going to the airport.”

“Merrick, NO. I don’t want you carpooling. I’ll pay for the shuttle. I don’t want you riding in someone’s car. Do you understand?”

“Mom I got you.”

He says he understands but how long can my fear of young people and road trips determine my son’s actions? He is 19 and I want him to be 20,21 and on and on. There will come a day when he does take a trip with friends and I’ll have to grit my way through it. My feeling now is that I won’t breathe until he’s safely at his destination and then safely back. It’s not how I want to live. I hope I’ll regain some calm and faith, but I’ve become a maven of safety statistics of buses, planes and trains vs. cars. Cars lose every time.

*

For anyone observing Mark and I as we tried to figure out the best and yes, safest place for Merrick to be until he could return to campus, you would have thought we were planning a reconnaissance mission. Mark paced the family room as I sat with my laptop googling hotels, looking up friends on Facebook trying to remember who lived in Boston.

Mark throws out, “Could you call your friend Doreen in Boston?”

“I’m not even sure she’s in town. Besides how’s he going to get there?”

“Well we told him we’d call him back and we need to before his friend leaves. That was the only way we had to stay in contact with him.”

“I know that,” I snapped. Then the obvious became the plan. “Let’s call Jordan’s dean. He said if we ever needed anything to call him.”

With that Mark picked up the phone and both of us started to feel we were doing something to help Merrick. Jordan’s dean was more than happy to help us and would pick Merrick up from campus then take him to his house. We texted Merrick the dean’s telephone number so he could arrange to get picked up. I felt foolish for talking to him like a 10 year old but I repeatedly reminded him to call me when he was with Jordan’s dean. When he finally called a mere 20 minutes later sounding relieved I felt the weight of the night and the panic of the day leave. After our call was complete, I continued to hold the phone, my forehead on my knees. Mark came over and sat on the ottoman across from me and held my legs. “He’s okay.”

Tears were all I could muster as a reply as the words, “Merrick is not Jordan,” were the mantra on my mind.

Mind Over Matter

I’m downstairs, listening to my daughters who are upstairs simultaneously practicing flute and clarinet. They’re in separate rooms but I have no idea how they can practice without messing up the other’s timing. Tomorrow is a snow day! It is the first my daughters have ever had since being in school. They are beyond excited. Merrick found out his high school is closed tomorrow as well, the first time since the mid 1970’s. Before he could fully relax he asked me, “Mom, they really said school is closed. You’re sure?” So we’re all hunkered down for the storm. Mark is home and aside from the howling winds our house feels safe.

I’m working to bring safety back to my spirit. When I emailed Edward to ask about the accident I did so without letting anyone know. Mark wishes I’d stop, not wanting me to hurt anymore than I do now. He thinks we know enough and that any additional details will only hurt me more. He may be right. The mother in me, Jordan’s mother, can’t rest without understanding the whole of the truth of that night. Mark’s afraid I’ll be haunted by what I find out. I’m afraid I’ll be haunted if I don’t. I check my email as usual everyday, not expecting to see a response from Edward but bracing myself just in case there is one. So far he has not responded or acknowledged my query of him. There may never be a response.

I did fantasize when I saw the mailman across the street today that perhaps Edward was writing a real letter and that was why I hadn’t heard from him yet. I know I’ve asked a lot of him. What I’m learning from my own experience about trauma and PTSD are that the things the mind does to protect the heart are astounding. Edward may be in full protection mode and unable to even go back to that night.

Mark reminded me when I told him about finally realizing that Edward put his t-shirt to the back of Jordan’s head not to his forehead, that I’d know that all along. So gently he said to me, “Remember, the coroner and James (a family friend who is an ER doc) told us that he couldn’t survive an impact like that to the back of the head.”

I remember that Mark talked to the coroner in MA by phone and James was also on the line. He told me afterwards what they said. What I remember from that conversation is him saying, “Jordan was asleep. He didn’t feel any pain.” That’s what my mind took in and that’s what my heart could handle. Almost 2 1/2 years later the shock and blur of Jordan’s accident are not as constant and I can’t explain to anyone why I crave details now.

I read a short story a while ago entitled, “The Girlfriend.” It is in a book by Maile Meloy called,Both Ways Is The Only Way I Want It. In the story a father seeks out the girlfriend of the man who murdered his daughter after the trial where the man is found guilty. He wants to know every detail of that night that he can find. What the father ultimately finds out makes him feel worse, almost a party to the crime instead of somehow more settled. I’ve thought about that story  a lot wondering if I’ll end up like the father having too much information that will have to somehow keep house with my pain not ease it. I just don’t know.

I found an entry in one of my journals from 11/10. The entry is entitled, “Why Do This.” Meaning why write a blog, why am I writing a book? I had a long list of reasons some of which are:

  1. To feel closer to Jordan
  2. To stop being afraid of being happy
  3. To accept that my boy is gone
  4. To figure out how to diffuse some of this pain

The last item on my list was:

5.To ask all the questions that I want answers to, even if there aren’t any answers.

The Need To Know

The back of his skull was crushed, that’s why Edward put his shirt under Jordan’s head not on his forehead like I’ve assumed and imagined he did for two years. The email from Edward that he sent on 8/29/09 told me plain as day, “I put my shirt under Jordan’s head to stop the bleeding.” I came across the email yesterday when I was cleaning up my inbox. Instead of skipping over it as I have for over a year I read it and it was the first time that the events of that evening made their way through my grief.

Jordan was dying when Edward pulled him from the car. The coroner’s report said his brain stem was damaged and that he never had a chance to wake up. My version of the events of that night was tidier. Jordan was asleep during the accident. He hit his head and never regained consciousness. I held that version until I saw the 2009 Winter Olympics and the luge accident where the athlete was killed. There was so much blood around his head. It was the first time I connected a head injury with blood.

My sister commenting on my “Looking Too Soon” post about the luge accident, wrote that her husband cleaned the blood from Jordan’s shoes. Reading her comment brought to my knees, hyperventilating and getting my first true glimpse of how horrific the accident scene must have been. What she knew and how she told me were things I wasn’t prepared to accept so I rejected her comment never allowing it space with the other comments on my blog, as though that would change the truth.

Everything I’ve written about the accident has Edward putting his t-shirt on Jordan’s forehead, a far less serious injury than the one described in the accident report and the coroner’s report. I read both reports and missed the details that gave the accurate depiction. In my version, the fantasy of a mother with a son who died, I wanted Jordan to go to the hospital so I could sit by his bedside and lie next to him and tell him, “Mama and Daddy are here,” until he drew his last breath.

He died on the side of the road and the blood that had to be staved wasn’t from a cut on his forehead but from the base of his crushed skull. It took me a year to realize that the cleaned up body with the bandaged forehead that I viewed at the funeral home wasn’t the body at the accident scene. My heart and mind for some reason are now willing to acknowledge more of  the trauma I blocked out before.

Seeing Edwards’ email yesterday I felt like I was reading it for the first time. It reignited all the questions I had about that night that only he, Christian and Matt can answer. Needing to know has started to overwhelm me. I emailed Edward yesterday unable to wait any longer to ask the questions that keep haunting me:

Did Jordan cry out in pain?

Why didn’t he wake up with all the commotion of you guys screaming when the car went out of control?

Did he wake up?

What did you say to him when you stayed with him while Christian and Matt went up the hill to wait for the ambulance?

Was he unconscious the whole time?

Did he ever say anything?

I’m not sure what I’ll do with the answers or if they’ll ever come, but I couldn’t stop myself from asking. For a while I played a counting game. When Edward, Matt and Christian are 25, no 30, maybe when they’re married or fathers, maybe then they’ll tell me exactly what happened that night. I’ve prevented myself from asking too much so far because the trauma those boys experienced on the side of the road watching their friend die has not escaped me. But it hasn’t changed the fact that trauma happened at home too, when the police came to my door and took safety away from my heart.

Edward is 24 and in my email I tried to explain why I couldn’t wait any longer. I told him: You’re right, Jordan is on my heart and mind everyday. I struggle with the fact that I wasn’t there to hold him, care for him and say goodbye. You did those things for me. But I have all these questions that require your frankness and as much recall as you can muster.

I’m envious of all the parents who got to touch, hold or sing to their children when they knew they were dying. I wonder what kind of person envies another parent who has lost a child? I battle with my shame. Edward is a complex person in my life. He drove the car when the accident occurred but he also carried Jordan from the car, held him and talked to him until the paramedics came. Edward was the driver and Jordan’s last caretaker, facts that are so entangled in my mind I don’t always know if they can be separated. Right now I have so many questions. The trauma of that night retreats at times and then rears up revealing specks of truth that I can no longer ignore. As much as it hurts I have to know what happened to my boy.

Honor Roll Please

My children are amazing. I know most parents feel this way and rightfully so, but I am learning so much from my kids about perseverance, determination, grace under pressure, and just grace. Merrick is home today still asleep as he’s finished with final exams and gets today and Monday off. He worked so hard. Even when he was exhausted and started to doubt his abilities, he kept pushing wanting to do his best. The last two weeks for him have included, applying to colleges and taking finals. The stress of college applications and the weight of having to do well on finals made him falter and wonder if he could do it. He wanted Jordan to talk to, to tell him it was going to be okay. He cried out for his brother.

“He’s the only person I want to talk to.”

“I know honey. I know you’re hurting and you miss him so much. You’re doing so much right now. I know this sounds simplistic, but it is going to get better. You’re not always going to feel so sad.”

Merrick looked at me with a mixture of weariness and hope and said, “I believe it’s going to get better. I just don’t know how to get there.”

The only words I could find were, “You’re already getting there. Just keep going. Jordan’s here with you.”

And he did keep going. He came home  after his last final so proud of himself and how prepared he felt for every exam. He fought through loneliness, sorrow and longing to achieve his goals.

*

Today Mark and I got the girls off to school early today so that we could attend the 6th grade honor roll breakfast. As we entered the building I thought about all the prayers I prayed that they would have an easy transition to middle school. I needed for this transition to be without too great an emotional cost.

I am so proud of them not only because of their accomplishments, but because they made the transition from elementary school to middle school with nervousness and a bit of angst but no trepidation. They looked forward to a new challenge and they are handling themselves so well.

They’re learning a lot in middle school. They’re realizing that grown-ups don’t always know what to say and sometimes say the wrong thing about grief and loss. Lindsay had to do an in class writing assignment  on a person she admired. She picked Jordan and wrote about his preparation for the lifeguard test. In the midst of the writing assignment her teacher called out, “Your assignment will be something you can read to the person you admire.” Lindsay kept working, head down knowing for her that wasn’t true. A few minutes later a boy in her class went up to the teacher and said, “I can’t read mine to the person I admire, he died.” The teacher’s response was, “Well read it to someone else who’ll appreciate it.”

Lindsay came home that day fuming, so angry that her teacher wasn’t sensitive to the kids who may be writing about someone who wasn’t here for them to read to.

“Mom the worse part was she didn’t even get it until someone reminded her that not everybody’s person was still alive.”

All I could do was agree with her and ask how she wanted to handle the situation. She told me that at the next parent-teacher conference she’d like to talk to her teacher about remembering everybody has different circumstances and no one likes to be made to feel left out or different. I told her, “Daddy and I will be right there with you. I think it’s great you’re letting your teacher know how you feel.”

Today  In the mass of 6th graders piling their plates with bagels, pastries and fruit I searched out and found my daughters. They explained that they were going to sit with their friends, “If that’s alright.” Mark and I made our way to another cafeteria table and sat with the some of the other parents who’d been ditched by their kids in favor of hanging out with friends. I stole glances at my girls watching as they giggled and chatted with their friends. I watched them, my heart bursting with pride at their resilience, energy, laughter and love of life.  Mark with the ever-present camera captured the joy on their faces as they stood to be recognized.

I hope and pray everyday that I’m doing right by my children. That my instincts lead me to give them the balance of firmness, understanding, love and needed relief when grief’s hold is too tight. As my auntie told me after Jordan died, “Jackie, just do the best you can.” I’m watching my children do their best and am so inspired.

Picture Day

My son Merrick was supposed to schedule the appointment for his high school senior portrait during the last weeks of school but repeatedly forgot. As I called to schedule his appointment last week, I remembered that I had gone through this same routine with Jordan. As I sat on the phone with the photography studio waiting to be transferred to the appropriate department to make Merrick’s appointment, I struggled not to let superstition and foreboding overcome me. I thought back to when I made the call to schedule Jordan’s appointment. I’d been annoyed that he forgot to handle it, but I was more excited about him entering his last year of high school. The senior portrait was the first milestone of that last year and marked the burgeoning college student to come.

Not only did Jordan forget to schedule his appointment, he almost forgot to go to the appointment. The day of his portrait sitting he raced into the house from playing basketball to quickly shower and change clothes. He called out to me, “Ma what should I wear? Matt is wearing a tie. Should I wear a suit?”

I yelled up the stairs, “Only if you want to. I don’t think you have to be that formal. Senior pictures always look a little unnatural to me. Wear something you like, that you feel comfortable in.”

Jordan came downstairs 30 minutes later wearing dark slacks and his goldenrod dress shirt. “Is this okay?”

“Yes, you look great. Now hurry up so you don’t miss your appointment.” I watched him out the back door and to the garage to the car.

I carried Jordan’s senior picture in my wallet and proudly showed it off. The last time I pulled it from my wallet was the day after his accident. I gave it to my friend Jeanne so she could scan it and email it to the Boston Globe for the article they were doing about the accident(Amherst Sophomore Dies in Crash). The picture ran with the article in the Boston Globe and then was the picture blown up and placed at the front of the church for the memorial service. Jordan’s senior portrait with his smiling, hope-filled face was the first thing I saw as my family and I made our way to the front row of the church.

I can’t lose another child. I contemplated not scheduling Merrick’s senior portrait as a way of safeguarding him against harm. Irrational thoughts filled my head. I reasoned, “I could take a picture of Merrick, he doesn’t need anything so formal. He doesn’t like formal portraits anyway, he probably won’t care if he doesn’t have one.” I calmed my fears enough to let my love for Merrick prevail. I don’t want Merrick to miss out on the high school rites of passage that he’ll cherish and remember. He’ll want to flip through his yearbook and see the faces of his friends and him. I’ll want to keep his picture in my wallet, just as I did Jordan’s.

I can only allow small bursts of thoughts on Merrick entering his final year of high school. I know that beyond this year lies his time away at college. This summer he’s been away for six weeks in New England at a pre-college arts program. When we talk he tells me, “I like college. I like the independence. I’m ready.” I listen to his words and give all the appropriate affirmations. “I’m so glad you’re having a good summer. It’s good to stretch yourself to see what your interests are. I’m glad you’re excited about college.”

I say all the right things and inside I struggle with my fears. I must let another son go away to college. He’s ready and excited to do his best this last year of high school to further his dreams. Part of me hoped and admittedly still hopes that he’ll feel the need to slow his pace. Maybe he’ll take a year off and work or do an internship close to home. He knows these are options but I can tell by the passionate way he speaks of his summer experience that he can’t wait for college. I won’t stand in his way. My husband always says, “You put all your hopes and dreams in your children.” He is right. My breath catches in my throat every time I fully think about another child of mine going away to college and the possibility that Merrick might not come home. I won’t let my fear be an impediment to any of his hopes and dreams. Breath by breath we keep going.

Merrick and I on his 17th birthday

Let It Be Me

Being diagnosed with lupus(www.lupus.org) at the age of 23 turned my “carefree 20’s” into a time of tests, lifestyle changes and medications. It was also however, a time of graduate school, love, marriage and my sons. My husband Mark knew of my illness well before we were engaged. In my attempt at full disclosure to whom he was marrying, I made sure he understood that I had an illness that I and now he would have to deal with for the rest of our lives. His only response to me was to quote a line from an Anita Baker song(\”Just Because\”) and tell me “it was a welcome sacrifice.” He loved me and anything that happened would be “our” problem.

Health issues have always been a part of my adult life. I’ve had numerous surgeries including the most traumatic one when I lived in Houston, TX. In 1995 I was told that an MRI showed a tumor on my spinal cord. My doctor at the time came into the exam room, looked at me and quietly said, “It’s not good news.” During the week between diagnosis and surgery the doctors had no doubt that the MRI scan showed an astrocytoma- a cancerous tumor with a typical life expectancy of 5-7 years.

In the week before my surgery I obsessively added and re-added those 5-7 years to my 32 years of age. My counting was always done in terms of how old my boys would be when I died. I counted and recounted determined to live long enough so that my then 5 and almost 3-year old boys would have their own memories of me. If I couldn’t live to raise them I wanted them to at least be able to recall special moments we had together; to remember what it felt like to have me as their mother. I poured all of my prayer and positive energy into a full recovery. I wanted Mark and I to raise our sons together. The surgery was successful and showed that the surgeons initial diagnosis was incorrect. The tumor was benign. I’d been given my life back.

In 1999 after the birth of my twin daughters, complications arose and I awoke from general anesthesia to hear Mark whispering in my ear that the doctors had to perform emergency surgery to stop the bleeding that started during delivery. In a soothing but shaky voice he told me that I’d suffered tremendous blood loss. He quietly said, “We almost lost you.” I listened to his words and my first question to him was, “Are the babies alright?” He assured me our daughters were premature but doing well. I drifted back to sleep relieved that my children were okay. I was grateful to be alive for all of my children.

Every time I had doctor’s appointments or hospital stays I was keenly aware of the sick children that were there. Any moments of self-pity I had were erased as soon as I saw a sick child. I would silently pray for the child and their family and then be grateful that I was the one enduring the unknown with painful tests and hospital stays. If it had to be someone in my family that was sick, I wanted it to be me. I felt that I had an unspoken pact with God that any suffering to befall my family should come to me.

I never shared my feelings about my pact with anyone. I held it close as my way of keeping my children from harm. Like most parents I wanted my children protected and free from as much danger and pain as possible. Even those times when I was faced with death, I knew should anything happen to me, I had no doubt that Mark would love and care for our children. My silent pact boiled down to its essence simply put was, “let it be me. “

I know how foolish, superstitious and naïve I was to believe that I could have a contract with God that included an immunity clause for my children.  It was still the deal that I wanted. I was to be the sponge that dealt with pain, my children would be spared. Intellectually I knew every time I whispered,” I glad it’s me and not the kids,” that I was operating under an illusion of control. There are no deals with God and he doesn’t offer immunity clauses. The fierceness of my Mother Love however, prevailed over logic and reason. Time and time again I truly believed that I was cocooning my children from harm. “Let it be me.”

Then the illusion that was my pact shattered. Our phone rings late at night and two police officers come to our door telling us the words no parent wants to hear. Our son was dead. Jordan was killed in a car accident. He was gone and all of the notions I had about my accumulated pain and suffering being the buffer that would provide my family some immunity from further tragedy was nullified. Even in my haze of shock and grief I felt so stupid. There are no bargains or immunity clauses. All I had to do was look around to see all the tragedy in the world to know that my family is not exempt because I made a one-sided deal with God.

My son is gone. Since Jordan’s death I struggle not to veer to the extreme and feel that my children will never truly be safe.  I still have my moments, my days when the thought heaviest on my mind is, “Let it be me.” I work so hard to stay sane and not slip too far into darkness and depression. Jordan’s life held virtue, humor, caring and so much light. Each day I make a choice to keep going for my family and for me. The future can’t be predicted. I can’t mystically shelter my children from all harm. The shock of loss has slowed my acceptance of the fact that complete protection is an illusion-even if it is fueled by the fiercest love. My vigilance towards my children is still strong. But a parallel vigilance is burgeoning. It still whispers, “let it be me” but the meaning has shifted. Let it be me who remembers all aspects of my son’s too short life. Let it be me that honors in my own way the zeal Jordan had for life. Let it be me that loves life and hopes for joy to come in the morning.

Mother Skills

When Jordan was in 6th grade he read a biography of Grant Hill and Grant became one of his heroes. Jordan liked Grant Hill’s work ethic, his generosity and athleticism. In Jordan’s mind, he was the consummate student/athlete and Jordan wanted to emulate him both on and off the court. I liked the parts of the book that Jordan read to me which talked of Grant’s mother and her strictness. The book talked of how Grant was teased by his friends because he couldn’t do all of the things his friends did and had a stricter curfew. According to the book Grant’s friends called his mother the “Sergeant” when he was in junior high school and she was promoted to “General” by the time Grant was in high school. As Jordan talked about the book I told him I liked Grant’s mother’s style. I always told him to expect the same from me that Grant expected from his mother.

The times that Jordan especially as a teen pushed the limits on his curfew or started a sentence with, “But all of my friends can,” I had no problem being the strict mother within his group of friends. I always told Jordan that as he got older he would be allowed greater freedom and responsibility.  I would sometimes remind him of Grant Hill by saying, “It worked for Grant Hill, and it can work for you too.” He would roll his eyes and storm off but I felt comfortable in trusting my instincts for my children’s futures.

I don’t trust my mother radar anymore. Losing Jordan without warning when I thought he was safe has altered my trust of my instincts. I ask myself all the time, “Why didn’t I know he was going to die? I could have stopped it from happening. Why didn’t I know?”

Grief colors every part of my world and I’m not the same person I was before October 12th, 2008. I have declared repeatedly that I will always be the mother of four. While I grieve the loss of my oldest child, my three living, learning, playing and mourning children need their mother. There are days when I’m here for them, and I’m not all at the same time. Numbness still lurks at the edges, and sometimes seeps in to share a place inside of me with grief. Guilt has overtaken me many times as well. Especially times when I realize that I forgot to check over a homework packet for my 10- year old twin daughters, or that my 17- year old son had a test and I didn’t quiz him, the way I used too before Jordan died.

For the first time since I’ve been a mother, I forgot about Easter baskets. Seven o’clock at night on the Saturday before Easter and the notion of our usual traditions hadn’t crossed my mind. I was exhausted from our spring break vacation. The suitcases lay in Jordan’s room still packed. Lupus had taken any energy I would normally have away. I was in the middle of a flare and was having trouble understanding how to make room for my chronic illness when my chronic grief was also flaring. Thoughts of college basketball, Easter Sunday, Spring break without Jordan were all swirling around in my head. How dare my body also betray me? I felt as if the marrow has been sucked from my bones. Rest is the only real remedy for fatigue that takes a stranglehold on my life but guilt at feeling neglectful wouldn’t let me rest.

I tell myself that being forgetful and not having the same attention to details as I had before losing Jordan is expected. My self-critic however is harsh and adds more doubt to whether I’ll trust my maternal instincts again. Even as I try to reprogram my instincts, sorrow clouds my judgment and makes me doubt my decision-making abilities. I was in Walgreen’s with my daughters the other day and stood chatting with a friend as my daughters perused the magazine section. As my girls came over to me I saw a lump behind the ear of one of them. How had I missed a marble sized lump? I finished up my conversation with my friend but my mind was already calling the doctor to schedule an appointment. I have a veneer of calm but inside of me a panicked voice is saying, “Please don’t let it be anything serious. Her gland is swollen and she doesn’t have any other symptoms. What if she has cancer?” When we see the doctor the next day, she assures us it’s nothing serious, just as I had assured my daughter the night before. She asks my daughter to wait out in the waiting room so that she can talk with me for a minute.

Marian, our family physician, and I have been friends for a long time. She looks at me and says, “You thought it was cancer didn’t you?” With tear-filled eyes I shake my head yes, not trusting my voice. She goes on to tell me that if she thought it was serious she would be running tests and scheduling biopsies. She knows that my greatest fear is that I’ll lose another child. Even as she tries to calm me by saying, “You’re not going to lose another child,” my vigilant part is whispering, “No one can tell you that.” I needed to hear her words though, as a counter-action for the fear that resides in my heart. I know living with the fear of losing another child occupying such a large part of me is not good for my family or me.

My vigilant part stays on high alert. When the girls walk the dog, when my son is late coming home, I tell myself everything is fine, but I don’t fully breathe again until I see them and hear their voices. Now with Merrick away for the summer what I thought was my most vigilant self has been pushed to a more extreme level. Nothing that happens with my kids feels routine. Taking my daughter to the doctor exposed how fully my greatest fear has taken hold inside me. I walk around attending to chores, errands and even fun with a wariness that is exhausting. I know I can’t continue living and behaving this way. I am consciously trying to regain my balance. It’s so hard to feel centered when at the edges grief, vigilance, anxiety and sorrow pull at me and demand attention.

Right now I’m reaching out to family and friends to help steady me as I relearn my balance, especially on the days when I sway so far from center that it feels like I can’t recover. Slowly ever so slowly I’m taking deep breaths in and exhaling fully. I’m trying to learn to do the best I can without so much fear, breath-by- breath.

Trial Run

“We’ll take him there. We’ll get him settled and he’ll have a good time.” I wake up in the middle of the night repeating what has become my new mantra. Merrick is off to a pre-college program for 6 weeks and I’m trying to figure out how I will allow my son to leave home for most of the summer without going mad. Jordan is gone, and can’t come back home. Everyday I live with the loss of my son. I’m stuck in a paradox of knowing that a lifetime ago, Jordan went away to college and didn’t come home. On this new journey the scars of loss cloud my judgment about what are the right experiences for my children to have. Merrick wants to go away and I don’t know if I can give the world another one of my children. I can’t lose another son and yet I know I have to let him go. I’m helping him prepare to go.

I’m filling out health forms, signing residence hall forms and buying supplies. I’ve done all of these things before. I helped Jordan prepare for college and for a summer program when he was in high school. Merrick in his excitement about his own pre-college program when he saw hesitation on my face countered with, “But Jordan went away when he was in high school.”  I watch Merrick’s face, seeing the excitement and anticipation. I remember back to Jordan’s summer away and how much it enriched him. I take in all of this information and know that it is Merrick’s turn to get the trial run at the college experience.

Merrick’s words are ringing in my ears as I try to ready myself to have him gone for 6 weeks this summer. He is so excited and rightfully so. It’s his turn to experience life as an almost college student. Jordan will forever be his role model and he looks forward to following in his footsteps by having his own adventure. I can’t tell him not to go without exposing the selfishness behind the act. “Stay home so I don’t worry every time the phone rings.”

“Stay home so I can hug you when I say goodnight to you.”

“Stay home because I can’t lose anymore children.”

“Stay home so I can feel like you’re safe.”

I could keep him home, find a program in Chicago that would suit his needs. But I know that if I start changing the trajectory of my children’s dreams I’m limiting their lives. I don’t want them to live afraid or to refuse opportunities for fear of worrying me. I have to adapt to my new reality. A reality that has an oldest child killed in a car accident and three younger children with full lives ahead of them learning how to be excited about life. I watch myself as I talk to Merrick about his time away. I encourage him to take advantage of the weekend getaways. I tell him, “You’re in a part of the country you’ve never been to before. Make sure you explore and see new things.” I caution him against spending too much time alone in his room. “Interact with your peers. Spending too much time alone will lead to feeling depressed. Take advantage of this opportunity.” I say all of these things to my son all the while wondering if I’m doing the right thing. A part of me wants to watch over him every moment. To tell him to come home at the first signs of homesickness, but I don’t. I tell him I’m excited for him, that he’ll need adjustment time but his experience will be good. I cheer him on even though my mind is screaming at me to make him stay home as though I can ward off danger if I keep him close.

In spite of my fears and because of faith we drive Merrick to his summer program. Mark, the girls and I help him get settled into his room and tour the campus with him. We meet his roommate and the Resident Assistants on his floor. We are in so many ways the typical family. As we prepare to leave to drive back to Chicago we all give Merrick one last hug and tell him we’ll call him when we’re home. Lindsay bursts into tears as soon as Merrick walks back to his dorm. I hold her close telling her I know she’ll miss him. I look back to see Merrick loping up the steps back into his dorm without a backward glance. His adventure begins.

My mind and heart continue to be in conflict. There are no quick fixes or instruction manuals on learning how to live, love and parent after losing a child. My mind nags me, making me question the wisdom of letting Merrick go away. It says “keep him home at all costs. Letting go is how you lost Jordan.” My heart even though it is bathed in sorrow still makes room for hope and pockets of joy. I won’t let my fears derail my children’s futures. I have to lead with my heart, summoning strength and courage to be the mother my children need. I’ll cheer them on and applaud all their accomplishments hoping for safe travels and always, always hoping that they come home.