Sharing my mourning journey as my family learns to live a new normal after the death of my 19 y.o. son in an auto accident on 10/12/08.

Posts tagged ‘joy comes in the morning’

Family Reunion- Dreamscape

I rarely have dreams of Jordan. I wake up sometimes with the vague feeling that he’s visited me in my sleep but I can’t remember any details. A few mornings ago the “Jordan was here,” feeling was with me. It wasn’t until I was taking a shower that I remembered my dream.

We’re in our old house. Mark, Lindsay, Merrick, Kendall and I are standing at the base of the stairs in the basement of our old house.

“Where is he?” is the impatient question from Lindsay.

“I don’t know I’ll text him.”

Right as I’ve typed the words, “where are you” into my phone, the door to the basement opens. Standing in the doorway is Jordan with a white, diffused light framing him. I’m facing the door and see him first. I can see him so clearly. The coffee with extra cream complexion, the light brown eyes that everyone says he got from me, his black hair closely cropped, like he’d just come from the barbershop and the smile that is almost as bright as the light.

Just as I’m about to shout, “He’s here,” Jordan raises a finger to his lips to silence me. He wants his entrance to be a surprise. I nod and watch as he starts down the stairs.

All their heads turn at the sound of his feet on the stairs and in unison they cry out, “Jordan,” as I watch, beaming. Mark gets to him first and pulls him in with one arm and plants a kiss on his cheek. Even though I can’t make out what’s being said, their voices are an intermingling of energy and excitement.

Lindsay, Kendall and Merrick rush towards Jordan and he reaches out to them with his right arm never releasing the embrace of his dad. I stumble towards them, smiling so hard that my face hurts. I loop my arm around Mark’s waist and he squeezes me tight. With my left arm I encircle our children and my hand rests on Jordan’s shoulder. I take in the moment, feeling the weight and texture of our entanglement. I breathe in the scents of hair, breath, comfort, safety, and shared joy that infuse our embrace.

WE are here!

Category:

birthdays, celebrations, death of son, Dreams, family support, going home, grief, Jordan, loss of child, Mother of Four

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Wedding Vows and Compromise

From the moment one says, “I do,” and commits her life to another the whole notion of sacrifice and compromise become a part of her vocabulary. In our early days of dating Mark and I were both weary from energy depleting relationships and wanted nothing more than to find someone with whom we could truly be ourselves. During our first date we talked of hating the game playing that had defined previous relationships we each had. We went so far as to make a pact that we’d have truth and honesty as our foundation and then we shook on it. It seemed so simple. We were on the same page and looking for the same things, a committed relationship, a partner that shared our values, someone to make us laugh and listen when we needed to unburden and cry. We have found that in each other.

I love when Mark tells the story of asking my dad for my hand in marriage. We’d met my parents in Vegas and Mark’s parents were there as well so that we could introduce everyone. Mark found himself in a difficult position. His dad was insisting he do the traditional thing and speak with my father about our impending engagement. Mark knew from talking to me that if he asked my dad for my hand, the response would be, “I don’t have anything to give away.”

Sandwiched between two strong-willed fathers, I wished Mark the best as he went off to talk to my dad. True to form as soon as he began to ask for my hand my dad interrupted him saying, “Boy, I don’t want to hear that kind of talk. It’s not for me.”

Mark nervously replied, “You’ve got to understand. My dad is pressuring me to do what men in our family have done for generations. I’m stuck so please let me finish.”

With those words Daddy softened and told Mark to take a look at me standing across the room. “What did Jackie have to say about this?”

“Well she warned me you would react this way.”

Daddy grabbed him by the shoulder and said, “Do you see that smile on her face? As long as you can help keep that smile there you’ll never have any problems with me.”

Mark and I have been married now for close to 24 years. We still watch our wedding video from time to time and my favorite part is after we’ve been announced to the congregation and our making our way back down the aisle, Daddy briefly stands with this huge smile on his face and pats Mark on the back. He knew I’d found my life partner.

Life has caused Mark and I to face and stand by every vow that we said those many years ago. We’ve faced sickness and health, richer and poorer and during our wedding ceremony said in strong voices, “Til death do us part.” Death has come to visit, not leaving either of us widowed but taking our oldest child and testing all the promises we made to each other. Would we still be honest and open with each other? Would grief drive a wedge between us or allow us to grow closer even as we mourned in different ways. We’ve held each other in sorrow, weeping until no more tears would fall. We’ve flipped through pictures of before Jordan died reminiscing and breathing the blessing that was his life. But there are times when our expressions of grief and love for our son take divergent paths. I regularly watch the video of Jordan from the memorial service. I cry every time and they are sweet cleansing tears. Mark hasn’t watched it since the memorial service. Mark occasionally wears some of Jordan’s shirts and sweatshirts and I can barely breathe thinking, “Those clothes aren’t for you.” But I stay silent because I know they bring him comfort and a connection to Jordan.

Now we’ve come to another crossroad and it has to do with the picture of Jordan we used for the memorial service. It was a poster-sized version of Jordan’s high school senior portrait. My extended family each has copies and they are proudly displayed in their homes. I never got around to framing Jordan’s portrait and after he died for me it was no longer his senior portrait but the memorial service picture. I couldn’t look at it anymore. But Mark wanted to put it up next to Merrick’s senior portrait. “Merrick looks so lonely. His brother should be next to him.”

“I’m not ready to do that. Can you take it to work and have the picture there?”

“If it’s too much for you, I’ll take it to work.”

That was the plan and even though it still felt unresolved I felt less anxious about having to look at the picture everyday. I didn’t want to let Mark down and I hated that the portrait no longer represented the sweet memory of watching Jordan hurriedly tuck in his shirt as he rushed out the door to get his picture taken. I wanted to reclaim that feeling but I didn’t know how. Thursday evening I was walking upstairs and glanced in the living room to see Jordan’s senior picture displayed on the coffee table. Shock and betrayal filled me. “He promised he wouldn’t put it up but he did.”

It was like the picture had some force field around it. I couldn’t even go into the living room and remove it from the table. I ran upstairs and confronted Mark.

“You said you were taking the picture to work. Why is it on the table in the living room?”

“What are you talking about, oh wait a minute I had the picture face down by my briefcase. Irena (our cleaning lady) must have put it up. I wouldn’t do that to you. I’ll go get it right now.”

“Thank you.”

It wasn’t sitting well with me that I was thanking Mark for removing a picture of Jordan. I needed that picture to be transformed and I didn’t know what it would take for it to be his senior portrait again. I walked by it face down on the dining room table for a couple of days. Then on a day that I needed a reminder that there were those out there who remembered that grieving lasted longer than a season, I received a card from my friend Sue who I haven’t spoken to in ages. The front of the card read, “Those whom we love and lose are no longer where they were before. They are now wherever we are.” St John Chrysostom Sue wrote an inspiring message inside to me and signed the card writing, “Shine on sweet sister.”

I realized as I read the card that I do want to shine on and part of that for me is taking away any negative aspects connected to looking at my son. His memorial service was beautiful and as I’ve said before I wish that we’d recorded it. During the service my thoughts were far from wanting any visual reminders of the event. The first moments of walking into the church were traumatic and I gasped when I saw the picture of Jordan haunted by the too big image of him on the dais. I tried to make it through the service by not gazing directly at his picture, thinking that I could somehow preserve it as what it was before if I didn’t look at it. But I did look at it as he looked out on the congregation with a perpetual smile. That beautiful smile that everyone who knew him commented on and all I could see at the time was a picture spoiled, totally ruined by death. How dare death make us choose a picture for a memorial service when all everyone wanted was for Jordan’s death to be a horrible mistake? So I chose instead to listen, keeping my eyes closed for most of the service and letting the sounds fill me with a peaceful connection to all that had gathered to pay tribute to Jordan.

The card from Sue reminded me of two things. One no matter how alone I feel sometimes, there are so many family and friends sending, prayers, love and light to my family and me. Two, Jordan is with me always and I choose to embrace him by watching videos, listening to his voicemail message, rereading old cards and letters from him, writing to him, talking to him and yes erecting his senior portrait where it should have been all along. I took the picture of Jordan examined it closely, looking deeply into his eyes and planted a kiss on his cheek before placing it on the table next to Merrick’s picture. Mark saw it a little later and asked what made me change my mind? I responded, “I don’t want to be afraid of anything connected with Jordan and I love you and think you should be able to see your boys side by side in our home.”

I have two boys that graduated high school and their pictures will always hold a place of honor.

Senior Portraits

Category:

Amherst College, anger, anniversaries, auto accident, brothers, celebrations, death of son, facebook, family support, friends, graduation, high school, Jordan, loss of child, mourning, seeking joy

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Learning to look forward-2012

Happy New Year and thank you to all who visit and comment on my blog.

I’m still getting used to the notion of a new year making its entrance without Jordan here to experience it with me. Tears have flowed already this morning as I learn to live in a world where I don’t get to see my oldest son grow and prosper. Even as I wiped the tears away my heart was grateful to have family and friends that I can share my deepest feelings with and not feel misunderstood. With every year I feel a part of my grief being transformed into a powerful love that comes from being able to mother such a wonderful son as Jordan. For that gift I always say, “Thank you.”

To all of you I wish peace, time for quiet reflection and experiences of real joy in 2012.

My family on Christmas Eve

Category:

Amherst College, anniversaries, auto accident, brothers, death of son, family support, friends, grief, holidays, loss of child, Mother of Four, motherhood, mourning, seeking joy

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August-Taking A Day At A Time

It is the first day of August and I’m reminding myself to breathe. It is a month filled with birthdays, back to school activities, joys, sorrows and goodbyes. August 2nd is my daughters’ 12th birthday and starting the month celebrating them is quickly followed by the reality of Jordan’s birthday being 7 days later.

Controlling my urge to scream and desire to sleep the month away are taking far too much of my focus and energy. Facing another August without Jordan brings pain as fresh as in the days after he died. He should be here, I want him here, singing happy birthday to his sisters and then having them reciprocate along with the rest of our family a week later.

This year is harder than last. Days have become intertwined as my mind ticks off my daughters’ birthday, Jordan’s birthday, preparing Merrick for college and then taking him to school at the end of August. The time and energy it takes for me to untangle all these so that each day can be felt and honored feels like it is slipping away. My daughters’ birthday is tomorrow and I want so much to feel nothing but joy in my heart, concentrating on the miracles that they are.

I went into preterm labor with them at 24 weeks. After spending 30 days in the hospital and 30 days at home on bed rest, they made their entrance into the world 2 months early, small but healthy, only needing to stay in the hospital until they reached the 5 pound mark. While I incubated with them growing inside me, I talked to them everyday, “Keep growing. We’re waiting for you, but don’t come too soon. Keep growing. Mama loves you.”

I look at them now and I see these two beautiful young ladies on the cusp of their teenage years and they make me so proud. They are kind, generous, funny and so loving. The care and love they show each other is something I’m learning is unique to twins. I’m spending today, buying their presents, planning surprises and praying that my heart and mind will breathe with me and take just one day at a time. August 9th will come and it will be a very different day, where stringing the words, “happy” and “birthday” together will feel impossible.

Tomorrow is my two favorite girls’ birthday. I want them to have a mother who is present for them and able to share in all their joy and excitement. This is my prayer.

Sister talk

Category:

Amherst College, anger, birthdays, celebrations, death of son, gifts, grief, Jordan, Mother of Four, motherhood, new family, prayer, seeking joy

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To Be A Sweet Offering

I’ve been reading a lot of poetry lately. The truth is I always read poetry.  For me it is a form of meditation. Yesterday I read for the first time the poem, “Self-Portrait” by David Whyte. One stanza leapt out at me:

I want to know if you are prepared to live in the world with its harsh need to change you. If you can look back with firm eyes saying this is where I stand.

The last few weeks have been challenging for me and my family. The challenge and the pain got an unexpected new dose yesterday with some very troubling family news. I ask for your prayers.

I heard a song last night called, “Encourage Yourself.” One of the lines of the song is, ‎”Sometimes you have to speak victory during the test.”

Mark and I talked last night about the bombardment of pain and bad news that has come our way in rapid fashion. I told him, “Weariness is setting in. I wake up every night at least once where my thought is Jordan is dead and I have to learn to keep going. I’m working hard to live life with a positive outlook.”

“I know, we both are. We’ll make it. We have each other, always.”

“Things are happening so fast. We don’t get a chance to catch our breath, to process what’s happening before something else happens. I don’t want to live my life always on guard. I want to live life with a positive outlook. Life can’t feel like a chore, something to be endured.”

Even in the midst of worry and sorrow there is a piece of my heart that tugs at my soul saying, “Hold on, Spring is coming.” It beckons me but in a voice oh so faint. I’m holding on, wanting to be a sweet offering to my family, friends, the universe and me.

Here is an excerpt from, \”Let It Be Me\,” a post I wrote back in 2010.

I work so hard to stay sane and not slip too far into darkness and depression. Jordan’s life held virtue, humor, caring and so much light. Each day I make a choice to keep going for my family and for me. The future can’t be predicted. I can’t mystically shelter my children from all harm. The shock of loss has slowed my acceptance of the fact that complete protection is an illusion-even if it is fueled by the fiercest love. My vigilance towards my children is still strong. But a parallel vigilance is burgeoning. It still whispers, “let it be me” but the meaning has shifted. Let it be me who remembers all aspects of my son’s too short life. Let it be me that honors in my own way the zeal Jordan had for life. Let it be me that loves life and hopes for joy to come in the morning.

Spring is coming

Category:

Amherst College, auto accident, chronic illness, death of son, family support, Jordan, loss of child, lupus

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Circling, Orbiting and Making His Presence Known

For much of my day, Jordan stands in the distance. He is far off and a bit hazy but I know it’s him. His stubbornness shows even in death. He doesn’t come closer when I beckon him, only when he feels it is the right time.

I’m learning how to listen to the laughter of his siblings and embrace its authenticity without always thinking, and wishing Jordan should be here. My children are circling each other, finding ways to be together that has Jordan as their outer orbit with his arms stretched wide encircling them all. They’re laughing more, teasing each other and having private brother sister jokes that tickle them to no end. I watch them and see how they’re moving on, grateful but always a little afraid that their joy means Jordan has been relegated to the past.

I don’t want any of us crippled by grief. All of us must plan and enjoy life. Moving forward with joy must not feel like a sting against Jordan’s memory. We’re planning a trip for spring break, to feel sun and warmth.

Yet again the, “How many” question will be asked? I’m getting better at saying 5 without adding caveats of, “We’ll always be 6.” I feel all of us moving forward and I feel Jordan near even when I can’t make out his face.

Jordan's forever beach chair

Category:

auto accident, death of son, getaways, grief, guilt, Jordan

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Christmas Time Is Here

My sister Julie is one of the most creative people I know. She and her husband couldn’t be with us in Chicago to celebrate Christmas this year, but she sent her presents ahead with our parents.

A few days ago she said to me, “There’s one gift I want you to open before Christmas. It may make you a little emotional. I just wanted you to be prepared.”

“Okay, thanks for helping me get ready.”

I knew her gift would be something connected to Jordan. I wondered what it would be and figured it would be a picture she’d found and framed.

When I woke up this morning before I opened my eyes I said, “It’s Christmas Eve,” and I started to cry. Another Christmas Eve and Jordan isn’t here. I wondered, “How are we going to keep doing this without him?”

I moved closer to Mark and laid my head on his shoulder. In his sleep he made room for me and put his arm around my shoulder. He woke up as he felt my shoulders shake from sobs. No words were needed. He held me until I reached for a tissue.

“Where are you going,” he asked.

“I have to go out and get pastries for breakfast. Mama and Daddy want those carrot cake teacakes from Bleeding Heart Bakery.”

“Can I go with you?”

“Yeah, that would be good.”

“Let’s stick closer together today okay?”

Through tears I nodded and said, “Okay, that sounds good.”

When we came home with the pastries I asked my mom about the gift Julie wanted me to open early. Mom retrieved the gift from a shopping bag and handed it to me. I started to cry as soon as I saw Julie’s customized wrapping paper. Here is the paper:

Jordan and Lego Santa

Paper is emblazoned with a line from, "My Favorite Things."

If you look closely there is a picture of Jordan taken by one of his friends next to a Lego Santa. The paper also has the words, “Brown paper packages tied up in string,” a line from, “My Favorite Things.” Jordan loved listening to Coltrane’s version of this song, especially at Christmas time.

I gazed at the paper taking in every detail and carefully opened it truly feeling that old adage, “It’s too pretty to open,” but I’m so glad I did. Over an orange cranberry teacake and a cup of coffee, I felt Jordan next to me as I opened the beautiful package. Inside the box was an ornament that Julie made for our Jordan section of the tree. She took a small canvas and made a beach scene complete with sand and shells. It has a beach chair beckoning Jordan to come and sit awhile. On the edge of the chair is a miniature version of the book, “Holler If You Hear Me, “ by one of Jordan’s favorite authors Michael Eric Dyson. Every time I look at the ornament I imagine Jordan approaching the beach chair ready to resume his reading and soak up the sun. Thank you Julie for helping me feel Jordan on Christmas Eve.

Jordan's Ornament

Category:

celebrations, Christmas, death of son, family support, gifts, grief, holidays, Jordan, motherhood, mourning, new traditions

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Sweet Honey In The Rock To End The Day

To all of you still visiting my blog I say thank you. Writing has been difficult for me lately. Grief doesn’t follow any specific path and I’m learning to lean into what is happening so that as my friend Tom tells me I can, “Feel what I’m feeling.”

I was fortunate to hear Sweet Honey in the Rock perform this past weekend. If they’re ever in your town make sure to see them. One of their songs put writing in my heart again. Your comments are welcomed and needed. Thanks

My morning started with the thought, “Why did they get to keep their sons and I didn’t.” I sat up straight in bed knowing that no more rest would come. All that day the, “Why them and not me,” feeling latched on invading most of my thoughts. I wanted Jordan. It was snowing out and I wanted to call him, hearing his sleepy voice as I described what home looked like in a blanket of snow.

“Are you warm enough? Are you wearing your heavy coat?”

“Yes Mom, I’m fine.”

That’s the conversation I wanted but there’s no number to call anymore. I stayed in my pajamas most of the day, which is such a rarity for me that my kids asked if I was sick. I told them, “No, I’m just looking at this snowy day and trying to feel cozy.” I knew later in the evening I’d get dressed because Mark and I were going to a concert but the day was spent wrapped in warmth wondering when the hurt of longing would lessen.

The night was icy and the snow had the crunch of cold. As we walked to the car bracing against the wind, Mark and I joked, “This better be the best concert we’ve ever been to.” Sweet Honey in the Rock was singing at a local college and I was excited to see them. Since college I’d missed going to their concerts for a variety of reasons but I was determined to hear them sing. They sing a mixture of folk, gospel, spirituals, jazz, blues and all of it with their voices as the only instruments. My college friend Melissa was the first to rave about their concerts. Everyone who saw them told me that you leave their concerts transformed.

As we settled into our seats a woman we’d met at the reception before the concert sat next to Mark. She was an administrator at the University and we talked at the variety of guests that came to perform. While making small talk she asked, “How many kids do you have?” Mark told her, “We have 4. Twin girls who are 11, a son who is 18 and our oldest boy was 19 when he was killed in a car accident.” I studied my program as he talked knowing the story by heart but still flinching when he said, “killed.” I briefly looked up and made eye contact with our row mate as her eyes offered condolences and then went back to the program. The lights dimmed and the concert began.

After a lively upbeat intro song called “Denko,” one of the singers introduced the song they were about to sing saying, “All of us have plans for what we want to happen after we die. Sometimes those plans are followed, sometimes they’re not.” She then went on to sing, “When I Die,” with the rest of the group repeating in perfect harmony the phrase, “When I Die,” as her, “music.” As the song started, Mark reached over and rested his hand on my knee. I could tell by his touch that he worried about the hard start to my day and if this was a song I could bear to hear. I squeezed his hand, closed my eyes and chose to be a part of the song.

Jordan’s voice was in my head as I sat up straighter swaying to the refrain, “When I Die, When I Die.”

“When I die, I want to be cremated.” That was Jordan’s desire expressed to Mark and me. We filed it away in the far recesses of our hearts because we didn’t think we’d need to carry them out. Gratitude filled me because we’d listened to Jordan and carried out his wishes. Then a perfect voice sang out, “When I die let my spirit breathe, let it soar like an eagle to the highest tree,” and I touched my throat as I imagined Jordan’s spirit soaring higher than it ever could on this earth. I opened my eyes briefly then quickly closed them back tight. I needed to experience this song without distraction. It meant hearing it and feeling it without worrying about what others around me were doing or how I looked to them.

“When I die, when I die,” the song continued and I thought of Jordan’s ashes and our need to spread them far and wide to signify the world traveler he would have been. I feel guilty that it is taking us so long to spread his ashes. It has been two years and we’re only starting to plan the journeys for Jordan’s ashes. The words to the song entered my body interrupting all guilty thoughts, “Well, well when I die you can cast me out into the ocean wide.  Let my spirit cry, let it enter the tears that make the ocean deep and wide.” Eyes still closed I saw Mark and I standing on a beach releasing Jordan’s ashes into the sea saying goodbye and safe travels one last time. The tears started to fall and I did nothing to stop them. The song held a truth that freed me from one of my burdens. I whispered to myself, “What do you believe? What do you believe? Then the answer came, “Jordan is safe. You don’t have to worry about him anymore. Jordan is safe.”

I leaned back into the song and rocked as I heard the next refrain,

“Oh, oh, oh when I die, toss me out into the winds of time

Let my ashes roam, blow here blow there

I know I’m gonna find my true home”

Tears streamed down my face as the song washed over me. The truth was there begging to be accepted. “When I Die.” The when for Jordan was an answered question. There is nothing I can do about the when. I listened to voices covering and comforting me and asked my heart to accept that Jordan is safe. In the long nights when sleep won’t come and all I want is to have my boy home, I can take comfort if I choose to believe Jordan is safe. I don’t have to worry about him any more. Many questions linger but that one can be put to rest if I allow it.

The fact that he is gone and he’s here is settling in and slowly finding it’s rightful spot within me. I feel him in the bright red cardinal that perches outside my window, peering in looking straight at me as I call him Jordan by name. Jordan’s spirit is in the coincidences of his name appearing or being overheard when I miss him most. He is in the emails, texts and notes from his friends reaching out to me when I ache for him. A beautiful song opened a small part of my heart to that truth. My sorrow hasn’t evaporated and my heart is not burden free. But there is a feeling of relief akin to joy to be able to put one of my worries to rest. Jordan is safe. No more harm can come to him.

“When I die, let these bones take root, let the seed that been planted let ‘em come up bearing fruit”

Category:

anger, anniversaries, auto accident, cremation, death of son, grief, Jordan, motherhood, mourning, spreading ashes

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Reading Jordan’s Gratitude List

I am participating in an online workshop given by my dear friend Tom Zuba called, “Living With the Holidays.” The workshop started on November 1st and the exercise yesterday was to:

Consider gathering a few items that connect you to the person (people) you love that have died.  Find a space for them.  In your bedroom.  In your home office.  Somewhere in your house.  It can be a place you pass often…or it can be an out-of-the way place in your house.  A destination, if you will.  A place you consciously have to decide to go to.

I thought a great deal about what items connected me to Jordan. I have pictures of him that I love and chose a few of them. I knew I wanted one of his shirts that still faintly holds his scent. His Ipod is something that I love scrolling through reading the titles of  and listening to the vast and varied  music, so that is in my “Connectedness” collection. I wanted a book because of Jordan’s love of reading, but couldn’t figure out which one to choose. Last night I sat down in the chair on our 2nd floor landing, something I rarely do, looked down and saw a book with an encircled half-moon and stars on the cover. It is one of Jordan’s journals from his youth. I flipped through it seeing his early attempts at rap, the beginnings of short stories and a gratitude list.

I sat reading and rereading  Jordan’s gratitude list, touching the page and smiling at his undeniable penmanship.  I remember when he wrote the list. I owned a copy of “Simple Abundance,”  by Sarah Ban Breathnach that I’d purchased right after it came out in 1996. I hadn’t followed it prescriptively but I liked the notion of focusing on gratitude.

One night when Jordan was in junior high and Merrick was in 3rd or 4th grade, the three of us  sat at our kitchen table and talked about gratitude. I don’t recall what prompted the conversation but we talked about the aspects of your life, not just things, that you are grateful for. I told them about gratitude journals and getting into the practice of writing down what you are grateful for before you go to sleep. I was going to make my gratitude list, before I went to sleep and challenged them to do the same. They were both reluctant, “Why do we have to write it down? Can’t we just think about it?”  I assured them that it was their list and they didn’t have to read it aloud or share it with anyone. The power was in taking time to reflect and to commit to writing those things you may take for granted but that bring peace and joy to your life.

I felt an instant connection to Jordan when I read his gratitude list. Even as I wonder how I can live in a world that took Jordan away, reading his list made me realize he is still bringing me peace and joy. In moments when I am so battered from the aches, tears, and sleeplessness that come from missing him, he reminds me about gratitude.

Here is Jordan’s List:

The List (Things I am grateful for)

  1. My friends and family
  2. My health
  3. The good neighborhood I live in
  4. My being able to eat every night
  5. My knowledge
  6. My good school
  7. My home
  8. Being able to concentrate at school
  9. People who care about me
  10. The luxuries I have that others don’t

Jordan drew a line after number 10 and then added the following:

11. My sisters

12. No homework

13. My bed

14. Sleep

I found Jordan’s journal as I faced another sleepless night wondering how long I would hurt so much. Having to accept, not just know, but come to full agreement with my heart and soul that my child is dead is the hardest thing I’ve ever faced. It is a journey of recalculating what truth means, of acknowledging how much pain I hold inside me and it is about wanting to feel better even when it means saying goodbye to my boy again and again.

I read Jordan’s words last night and added my own to the list.

I am so grateful to be Jordan’s mother and still have the opportunity to learn from him.

Category:

anger, anniversaries, auto accident, chronic illness, college, death of son, grief, guilt, Jordan, learning to exhale, Mother of Four

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Let It Be Me

Being diagnosed with lupus(www.lupus.org) at the age of 23 turned my “carefree 20’s” into a time of tests, lifestyle changes and medications. It was also however, a time of graduate school, love, marriage and my sons. My husband Mark knew of my illness well before we were engaged. In my attempt at full disclosure to whom he was marrying, I made sure he understood that I had an illness that I and now he would have to deal with for the rest of our lives. His only response to me was to quote a line from an Anita Baker song(\”Just Because\”) and tell me “it was a welcome sacrifice.” He loved me and anything that happened would be “our” problem.

Health issues have always been a part of my adult life. I’ve had numerous surgeries including the most traumatic one when I lived in Houston, TX. In 1995 I was told that an MRI showed a tumor on my spinal cord. My doctor at the time came into the exam room, looked at me and quietly said, “It’s not good news.” During the week between diagnosis and surgery the doctors had no doubt that the MRI scan showed an astrocytoma- a cancerous tumor with a typical life expectancy of 5-7 years.

In the week before my surgery I obsessively added and re-added those 5-7 years to my 32 years of age. My counting was always done in terms of how old my boys would be when I died. I counted and recounted determined to live long enough so that my then 5 and almost 3-year old boys would have their own memories of me. If I couldn’t live to raise them I wanted them to at least be able to recall special moments we had together; to remember what it felt like to have me as their mother. I poured all of my prayer and positive energy into a full recovery. I wanted Mark and I to raise our sons together. The surgery was successful and showed that the surgeons initial diagnosis was incorrect. The tumor was benign. I’d been given my life back.

In 1999 after the birth of my twin daughters, complications arose and I awoke from general anesthesia to hear Mark whispering in my ear that the doctors had to perform emergency surgery to stop the bleeding that started during delivery. In a soothing but shaky voice he told me that I’d suffered tremendous blood loss. He quietly said, “We almost lost you.” I listened to his words and my first question to him was, “Are the babies alright?” He assured me our daughters were premature but doing well. I drifted back to sleep relieved that my children were okay. I was grateful to be alive for all of my children.

Every time I had doctor’s appointments or hospital stays I was keenly aware of the sick children that were there. Any moments of self-pity I had were erased as soon as I saw a sick child. I would silently pray for the child and their family and then be grateful that I was the one enduring the unknown with painful tests and hospital stays. If it had to be someone in my family that was sick, I wanted it to be me. I felt that I had an unspoken pact with God that any suffering to befall my family should come to me.

I never shared my feelings about my pact with anyone. I held it close as my way of keeping my children from harm. Like most parents I wanted my children protected and free from as much danger and pain as possible. Even those times when I was faced with death, I knew should anything happen to me, I had no doubt that Mark would love and care for our children. My silent pact boiled down to its essence simply put was, “let it be me. “

I know how foolish, superstitious and naïve I was to believe that I could have a contract with God that included an immunity clause for my children.  It was still the deal that I wanted. I was to be the sponge that dealt with pain, my children would be spared. Intellectually I knew every time I whispered,” I glad it’s me and not the kids,” that I was operating under an illusion of control. There are no deals with God and he doesn’t offer immunity clauses. The fierceness of my Mother Love however, prevailed over logic and reason. Time and time again I truly believed that I was cocooning my children from harm. “Let it be me.”

Then the illusion that was my pact shattered. Our phone rings late at night and two police officers come to our door telling us the words no parent wants to hear. Our son was dead. Jordan was killed in a car accident. He was gone and all of the notions I had about my accumulated pain and suffering being the buffer that would provide my family some immunity from further tragedy was nullified. Even in my haze of shock and grief I felt so stupid. There are no bargains or immunity clauses. All I had to do was look around to see all the tragedy in the world to know that my family is not exempt because I made a one-sided deal with God.

My son is gone. Since Jordan’s death I struggle not to veer to the extreme and feel that my children will never truly be safe.  I still have my moments, my days when the thought heaviest on my mind is, “Let it be me.” I work so hard to stay sane and not slip too far into darkness and depression. Jordan’s life held virtue, humor, caring and so much light. Each day I make a choice to keep going for my family and for me. The future can’t be predicted. I can’t mystically shelter my children from all harm. The shock of loss has slowed my acceptance of the fact that complete protection is an illusion-even if it is fueled by the fiercest love. My vigilance towards my children is still strong. But a parallel vigilance is burgeoning. It still whispers, “let it be me” but the meaning has shifted. Let it be me who remembers all aspects of my son’s too short life. Let it be me that honors in my own way the zeal Jordan had for life. Let it be me that loves life and hopes for joy to come in the morning.

Category:

chronic illness, grief, loss of child, maternal instinct, mourning

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