Sharing my mourning journey as my family learns to live a new normal after the death of my 19 y.o. son in an auto accident on 10/12/08.

The World Keeps Turning

“Interesting how these days come and go regardless… you are still here and the questions remain.” (Facebook message from my friend Tom who knows loss too well)

I spent time on Jordan’s birthday sitting on the edge of my bed looking through the leather-handled box that holds mementos of him. Through sobs, I looked at some of my favorite pictures of him that I like to keep close so that I can hold them to my heart and then kiss his face. I re-read letters he had written to me as a boy, most of them of the “I’m Sorry” variety. I opened the bag that held his hairbrush, held it to my nose and inhaled trying to have him close by his scent. This was my private time with Jordan. Time to reflect on how big and wide my love and longing for him is. It is so hard to believe that the universe stays in motion when my world is upended.

On Jordan’s birthday my daughter Kendall suddenly asked if the mail would be delivered that day. I quickly answered, “Yes” and returned to loading the dishwasher. A few moments later after listening to her talk with her sister, I figured out why she’d asked the question. It was Jordan’s birthday and she assumed that it was a holiday and mail service would be stopped. The innocence of her question illustrated how all of us that love and miss Jordan were feeling. Why wasn’t there a pause in the Universe? The world should have stopped moving at least for a moment on August 9th because Jordan’s not here and his birthday is, again. As outrageous and illogical as it is, it is still hard to believe that the world keeps going when unbelievable heartache surrounds my family and I and keeps us tethered to sorrow.

Banner at Jordan's tree dedication, August 2009-his 20th birthday

Dear Jordan,

I woke up around 5:45 this morning because I thought I heard your cellphone alarm. In the distance I heard your signature ringtone of the flute interlude from the “The Boondocks” show. Merrick still loves that show by the way. I watch it with him sometimes but he doesn’t laugh as long or as hard as he did when the two of you watched it together.

When I heard your ringtone I sat up in bed and my first thought was, “I wonder why Jordan’s getting up so early.” That moment was fleeting as I became fully awake and realized I’d only dreamed hearing your phone. Even still, I lay back on my pillow, closed my eyes and smiled remembering all the times you were just down the hall. I couldn’t sleep after dreaming of you being so close but I wouldn’t trade that moment of fuzzy awareness when I thought you were safely home even though I did have to let it go.

Today is your birthday and I’ve been thinking so much in the past week about all the things I imagine you’d be doing with your life. In my mind you’ve told me about your semester abroad in London and your travels in Europe. Right now you would be planning what countries you want to visit in Africa as you prepare for your Senior year in college. Watching your friends mature and settle in on various interests gives me a portal into what things you might be doing now. Kathryn keeps in touch and has been so kind and giving to our family. I see why you liked her so much. She like you is a Political Science major. I can imagine the long talks you two would have about how you planned to change the world. Matt, Billy, Luc, Quinn, Pat and Sam come to visit regularly. They keep us updated on their lives and take special interest in what’s going on with us, especially your siblings. They are amazing young men. Some of them have started a music production company and have “dropped”(I’m learning the lingo) two albums. They have enfolded Merrick into their group and he has done a couple of songs with them. Their love for you shows in the care they give your brother.

I watched that crazy YouTube video, “Charlie Bit Me,” this morning. When I was on my computer it popped up on the Huffington Post site and I couldn’t help but click on it. I laughed as I watched it, remembering when you first showed it to us. I don’t know how many times we watched the video that summer but I do remember all of us taking on British accents as we conversed in the house. The laughter and fun you brought into our home will always linger. Rarely a day passes that your brother and sisters don’t start a sentence with, “Remember when Jordan….” We all miss you. Learning how to live as a family of 5 when in our hearts we are forever 6 is so hard. We keep going fueled in part by our love for each other and the love and sweet memories you gave us.

Today, August 9, 2010 I’m struck by how much I anticipated seeing you turn 21. Your birth date is 8.9.89 and today, 8.9.10, I can imagine you proclaiming in your deep voice how incredible you are because of the way the numbers aligned for you. I realize that all of your milestone birthdays have been milestones for me as well given you’re my oldest child. You taught me what “5” looked like, what to expect with a teenager and the thrills that come with 16 and 18. Even though 19 was the last birthday we shared with you on this earth, what a milestone it has become. I want you to know how much you are loved and missed. We will celebrate today, this day, because it gave us you. Happy birthday Jordan

Love,

Mama

Jordan celebrating his 19th birthday with his siblings

8.9.10

Tomorrow’s date is 8-9-10. It is Jordan’s 21st birthday. I’m home today wondering how I’ll make it through tomorrow without crumpling and breaking. Today I keep agonizing over why I didn’t plan differently and have my family away for this weekend and tomorrow. Somehow the distraction of a different place seems like it would be a balm to ease us into honoring Jordan and celebrating his life. It may be “smoke and mirrors” to assume that a change of venue would mean hurting less. Right now it’s a chance I wished I’d taken. Today my mood has been one of longing and sorrow. Grief has me wishing I could transcend time, move to August 10th and keep August 9th as a day touched only by joy and celebration.

Last year was our first August without Jordan. We approached his birthday last year with trepidation and confusion. We knew we would ache for him and wondered how we would manage to celebrate his day. The day came and so did the realization that celebrating his life was vital to keeping his memory alive. This year feels harder knowing that last year was the beginning of our “August 9th’s” without Jordan. Tomorrow is a hallmark birthday, one of the final milestones of youth. It is a day that I looked forward to toasting with my son not in memoriam to him.

Tomorrow will come, as has every day since October 12th, 2008.  I hope and pray that intertwined with my sadness will be enough love to see me through. I miss my boy. I want Jordan back. I want him to come home. I want to sing “Happy Birthday” to Jordan and watch him proclaim himself officially a man. My heart is so heavy right now. The thought that tomorrow, especially tomorrow can come without Jordan on this earth makes my throat ache with tears.

Today I cry for all the things he doesn’t get to do or be. Would he have been the political pundit, expertly using what he’d learned as a Political Science Major? Or would he have followed his love for music, especially hip hop and jazz and became a record producer? When would he have married? Would he have travelled the globe having adventures and friends all around the world? Those are the things I wonder about and on good days dream about. I’m trying to let tomorrow,8.9.10, take care of itself without my worry and sorrow guiding its outcome. It will always be a special day because twenty one years ago, it gave me my firstborn. Jordan came into this world and gave me the gift of motherhood.

A special moment with my firstborn

Jordan at his 1st birthday party, laughing at his Dad whose trying to get him to blow out candle.

Jordan and I when we dropped him off at college his Freshman year.

Learning to Exhale

My husband and I took my daughter to see a specialist on Wednesday. She has been ill and fatigued for much of the past month. Our family physician arranged for this exam by a specialist. As we sat in the waiting room prior to our appointment, I was so anxious. I sat absorbing all the sights and sounds around me. I watched a father giving an IV medication to his daughter who looked to be the same age as my daughter. It was clear this was a typical routine as he rooted through his bag pulling out syringes and alcohol pads to seal off the IV tubing when the medication was complete. I saw children of varying ages leave the office after the appointment knowing that soon it would be our turn. My daughter looked over at me from her seat and mouthed, “I’m nervous.” I mouthed back, “I know, it’s okay.” She smiled at me and returned to fiddling with the cellphone she received for her birthday two days prior. Then her name was called and we rose up and took our turn.

The doctor couldn’t quite pinpoint the cause of my daughter’s symptoms but through reviewing her lab results and his exam of her, he was able to rule out the more serious illnesses we were concerned about. He changed her medication regimen and wants to wait a few more weeks to see if her symptoms subside. Speaking in a bit of code because my daughter was in the room I told him that we were relieved by what he felt she didn’t have as much as his reassurances that it was something minor. He was optimistic and realistic at the same time. He told us that as a precaution if her symptoms didn’t improve in 3 weeks or so, there would be another round of tests and different specialists to see. For now I’m happy that she’s resting easier and getting her energy back. We weren’t given any guarantees but I know that my husband and I are doing the best we can to ensure our daughter’s well being. We left feeling more relieved than anxious.

In the ride home after the appointment I sat quietly, realizing how exhausted I was. I’ve spent much of this summer in an anxious, vigilant state. I dropped my son off at a 6-week summer program at the end of June. The first week he was gone my mind raced with thoughts about his safety. I felt as though I was holding my breath. I caught myself so many times with my fists clenched having to force myself to take a deep breath. In those first weeks of Merrick being away, I decided I wasn’t going to spend the six weeks he was gone tense and afraid while he was experiencing an adventure he was so excited about. I was going to borrow some of his excitement and learn to exhale and let go of some of my fears. I breathed in deeply and exhaled on the way home from the doctor’s appointment releasing some of the anxiety that was travelling with me.

I am still learning to exhale. I am learning that I want my children to live full lives even when it means they travel far from home. I am learning that even after one of my children dies my other children may get sick and I have to care for them and advocate for them; something I can’t do if I’m crouched in fear. I am learning that the quiet that envelops my home when my children are away is not a death knell, even though death has come to call. I am learning that grief takes so many forms and is not on any timetable. I am learning to feel what I’m feeling without fear that grief will destroy me. With my daughter’s illness this summer I’ve cried out of fear and from relief. I’m doing the best I can for my children. Merrick comes home today from his 6 week sojourn. It is a triumph for him, immersing himself in a pre-college program with such passion and dedication. It is a triumph for me that fear has not stopped me from allowing my children adventures. I am learning to exhale.

Birthday Girls

My girls are 11. Their birthday was August 2nd. In many ways they are typical pre-teens. I’ve learned because of them that “Tiger Beat” magazine is still in production. They are eager for their soccer season to start and have a list of the movies they want to see. Beyond the typical tween realm is the grief and sorrow that lurks in their eyes and the worries they carry. They fear phones ringing late at night and the hallway outside their bedroom being too dark when they are trying to sleep. With help they are learning to manage their fears. Their dad and I love them, hold them and listen to them when their sorrow and worry grow too big for them to carry.

With everything they carry there is the additional component of one of my daughter’s being sick for the last few weeks. After repeated visits to the doctor, medication and lab tests, our family physician has determined that my daughter needs to see a specialist. Mark and I are feeling the anxiety of being in the limbo state where there are so many, “What if?” questions swirling that take us down a frightening path. Despite our worry we made sure that the party our daughters planned(Party Planning) happened. Mark went with the girls to pick up their specially designed cake at Bleeding Heart Bakery(Bleeding Heart Bakery). The girls prepared with such zeal, tying balloons on the front porch, hanging purple and pink streamers in the doorway, cleaning off the volleyball so they could play in the backyard and peering into all the grocery bags to make sure I got the right kind of potato chips, and licorice. The girl’s “Rockin’ 11” sleepover party was two days before their birthday and judging by the screaming, giggling, singing and dancing the party was a huge success. It was so good to see both of them relax a bit and embrace the fun and silliness a party with their friends had to offer.

On my girls’ actual birthday the excitement from their party had started to wane. My daughter tried to find energy so she could exuberantly participate in the activities planned for the day but it was too much. Half of her birthday was spent in bed because she wasn’t feeling up to going bowling or out to dinner as we’d planned. Mark and I shared concerned looks, too afraid to voice our fears. I called our doctor again telling her that my daughter was getting worse not better. I hoped that after she talked to the specialist that day, we could get an appointment as soon as possible. As one daughter lie in bed the other hovered nearby with an ambivalent mix of concern and frustration. It was her birthday too and amidst her worry was her desire to celebrate-but only if she could do it with her twin.

This summer is our second without my son Jordan and the first with my son Merrick away for so long. He’s been at a 6-week pre-college program since the end of June. My daughters wept when they realized that Merrick wouldn’t be here for their birthday. They each said to me, “Neither of my brothers is here for my birthday.” I held them close reminding them that we would do video “Ichat” with Merrick and all sing “Happy Birthday” to them together. I told them too, “Jordan will always love you, just like you’ll always love him. You’ll feel him on your birthday.”

Our house has been quiet this summer with Merrick away and Mark frequently travelling. The girls have kept to themselves, preferring to play together or do activities with me rather than hang out with their friends. I pushed a few times suggesting that they call and invite friends over. They would half-heartedly agree on occasions but spent most days riding bikes, watching TV and to my delight reading to each other. Sleep still does not come easy in our house and there are many nights that I walk past their room and hear the sounds of them talking, or see the shine coming from their book lights as they take turns reading to each other. I’m so glad they are so close and have each other as sisters and friends.

As the days have continued with my daughter not feeling better, there is a storm of worry brewing inside me. I’m doing my best to keep it at bay. In the midst of excitedly anticipating the return of my son Merrick from his 6 weeks away this summer and planning for the celebration with family and friends to honor Jordan on what would/should be his 21st birthday, I’m gathering lab results and making sure I have my insurance card so that I can take my daughter to see the specialist recommended by our family physician. My daughter’s appointment is today and she is more ready than worried. She tells me, “I need to know how to feel better.” She’s been sick now for 3 weeks and her symptoms are not abating. We need answers. We need our daughter to be okay. Waiting is the most difficult part. Our family physician tells us not to worry and to wait until we have more information. It has taken energy reserves I didn’t know I had to tell myself, “She’s going to be okay. She’s going to be okay,” as I wrapped their gifts and took pictures of them on their birthday.” My sister eases my fears about my daughter, reminding me how she and I have learned to live with lupus. She tells me with authority and conviction, “We’re warriors. No matter what happens, we’ll help her through.”

Picture Day

My son Merrick was supposed to schedule the appointment for his high school senior portrait during the last weeks of school but repeatedly forgot. As I called to schedule his appointment last week, I remembered that I had gone through this same routine with Jordan. As I sat on the phone with the photography studio waiting to be transferred to the appropriate department to make Merrick’s appointment, I struggled not to let superstition and foreboding overcome me. I thought back to when I made the call to schedule Jordan’s appointment. I’d been annoyed that he forgot to handle it, but I was more excited about him entering his last year of high school. The senior portrait was the first milestone of that last year and marked the burgeoning college student to come.

Not only did Jordan forget to schedule his appointment, he almost forgot to go to the appointment. The day of his portrait sitting he raced into the house from playing basketball to quickly shower and change clothes. He called out to me, “Ma what should I wear? Matt is wearing a tie. Should I wear a suit?”

I yelled up the stairs, “Only if you want to. I don’t think you have to be that formal. Senior pictures always look a little unnatural to me. Wear something you like, that you feel comfortable in.”

Jordan came downstairs 30 minutes later wearing dark slacks and his goldenrod dress shirt. “Is this okay?”

“Yes, you look great. Now hurry up so you don’t miss your appointment.” I watched him out the back door and to the garage to the car.

I carried Jordan’s senior picture in my wallet and proudly showed it off. The last time I pulled it from my wallet was the day after his accident. I gave it to my friend Jeanne so she could scan it and email it to the Boston Globe for the article they were doing about the accident(Amherst Sophomore Dies in Crash). The picture ran with the article in the Boston Globe and then was the picture blown up and placed at the front of the church for the memorial service. Jordan’s senior portrait with his smiling, hope-filled face was the first thing I saw as my family and I made our way to the front row of the church.

I can’t lose another child. I contemplated not scheduling Merrick’s senior portrait as a way of safeguarding him against harm. Irrational thoughts filled my head. I reasoned, “I could take a picture of Merrick, he doesn’t need anything so formal. He doesn’t like formal portraits anyway, he probably won’t care if he doesn’t have one.” I calmed my fears enough to let my love for Merrick prevail. I don’t want Merrick to miss out on the high school rites of passage that he’ll cherish and remember. He’ll want to flip through his yearbook and see the faces of his friends and him. I’ll want to keep his picture in my wallet, just as I did Jordan’s.

I can only allow small bursts of thoughts on Merrick entering his final year of high school. I know that beyond this year lies his time away at college. This summer he’s been away for six weeks in New England at a pre-college arts program. When we talk he tells me, “I like college. I like the independence. I’m ready.” I listen to his words and give all the appropriate affirmations. “I’m so glad you’re having a good summer. It’s good to stretch yourself to see what your interests are. I’m glad you’re excited about college.”

I say all the right things and inside I struggle with my fears. I must let another son go away to college. He’s ready and excited to do his best this last year of high school to further his dreams. Part of me hoped and admittedly still hopes that he’ll feel the need to slow his pace. Maybe he’ll take a year off and work or do an internship close to home. He knows these are options but I can tell by the passionate way he speaks of his summer experience that he can’t wait for college. I won’t stand in his way. My husband always says, “You put all your hopes and dreams in your children.” He is right. My breath catches in my throat every time I fully think about another child of mine going away to college and the possibility that Merrick might not come home. I won’t let my fear be an impediment to any of his hopes and dreams. Breath by breath we keep going.

Merrick and I on his 17th birthday

Cleansing Breaths

This past weekend I felt as though I was in the presence of a miracle. I would appreciate the impressions and comments of all my readers in the comments section. Thank you

On Friday night torrential rains steadily pounded the roof and windows of my house all night. When I got out of bed Saturday morning, the rain had stopped and the sun was reclaiming its place in the sky. Absentmindedly I traipsed down my basement stairs to retrieve a towel from the laundry room. I stopped on the last stair right before stepping into a pool of water on the floor. Every inch of our basement was flooded with about 3 inches of water. Mark had just gotten home at 5:30 that morning from a business trip. The storm delayed his flight and the flooded streets made a 30-minute drive home take two hours. I didn’t have the heart to awaken him and tell him what task lay ahead of us for the day.

My mother and sister Julie were visiting. I came upstairs so disappointed that the day of relaxing, talking and just being together I’d envisioned for us had to be changed. As soon as my mother and sister took a look at the basement their only response was, “Well let’s get started.” I found rain boots for all of us and we began carting rain soaked items from the basement. Our basement is unfinished except for the laundry room. We’ve lived in our house a little over two years and the basement has been the repository for everything from furniture from our old house, moving boxes filled with “don’t know what to do with” items, to out of season clothes in plastic containers. We laid the items that we could salvage on the driveway even though the forecast called for more rain. With each rain soaked item that we brought to the driveway, the sun shone brighter and we felt assured that we would be able to finish clearing out the basement without the threat of rain.

As Mama, Julie and I continued to haul items from the basement, Mark awoke and after having breakfast joined us. Most of the boxes and plastic bags I looked through held items that Mark and I had been meaning to give away or throw away. We gathered up the clothes and books that were not damaged and put them in the back of the car so they could be given to a charity we routinely gave donations. Mark and I said in amazement to each other more than once as we cleaned, that the storm forced us to handle a task that we had put off for far too long.

Just as the motions of clearing, sorting and cleaning started to feel routine, Mama pointed to several plastic bags under a workbench and asked me, “What’s in those?” I told her I didn’t know and continued talking to her as I opened the first bag just like I’d done so many others that morning. I peered in and saw the backpack Jordan used in college. I dropped the bag and started moaning, “Oh no, oh no.” I stood by the bags and cried, regretting that Jordan’s backpack had been ruined. My mother came over and held me as I cried.

I finally took a deep breath and looked through the other bags. They held some of Jordan’s clothes and towels from his belongings that were shipped home after he died. I’d gone through his things and washed all of the clothes I knew we wanted to keep. Several times I’d tried to throw away these bags that I stood crying over. Each time I tried, I couldn’t bring myself to throw them away. I knew they would never be used but they were Jordan’s and that was my rationale for keeping them. Now they were soaked with rainwater. Mark came over to me and gently asked what I wanted to do with the bags. Through tears I told him, “We have to throw them out. They’re all ruined. We have to throw them out.” I took one of many deep cleansing breaths that day to calm myself so I could keep working.

We continued working only breaking for lunch. As we sat eating, Mark said he thought we were pretty much done with clearing out the basement. I reminded him as I had earlier that water also got into the small room directly across from the stairs. He looked at me after I spoke and sighed. I held his gaze because like him I knew the hardest part of the day was before us. The room I referred to held the moving boxes from Jordan’s room in our old house as well as the computer that he used in high school.

When we moved I’d told Jordan that he would have to sort through the boxes from his old room. He joked with me that he didn’t mind if I wanted to unpack them. We’d gone back and forth about his boxes; him hoping I’d unpack them for him, me letting him know that they’d be waiting for him when he came home. We moved in January of 2008. Jordan was home for a few days during his Spring break and only a few weeks during the summer. He never got around to his boxes. Even when he left for his sophomore year of college, I teased him saying his boxes would be waiting for him when he came home. Six weeks after leaving for school Jordan was killed in the car accident. He didn’t get to come home from school anymore.

Even though I tried to normalize the storage room that held Jordan’s boxes by storing other household items there it was still a wistful place. Every time I went into that little room to get a roll of paper towels or to retrieve snow boots or snow pants for the girls, I looked at Jordan’s boxes. I would sometimes peer into them but I always stopped myself from looking further. I wasn’t sure I could take such a long look at all the memories of Jordan’s childhood and adolescence that those boxes held.

As we set out to clean the storage room, Mark and I felt foolish and reckless for potentially losing mementos of Jordan because we were too filled with sorrow to go through his boxes. Then the storm came and the choice of cleaning out the boxes was made for us. As Mark and I started opening boxes I saw so many books that Jordan cherished! Just looking at the eclectic assortment, from Homer’s “The Odyssey” to “The Rose that Grew from Concrete,” by Tupac Shakur I was so proud of my “Renaissance Man” son. I wept over the books that could not be salvaged; and I wept as I painstakingly dried the pages of other books I was determined to keep.

Jordan holding a book he got for his 15th birthday

Mark continued to clear the room and then he came across a box that held a folder with essays Jordan wrote during a summer internship and his high school backpack. Inside the backpack were a computer keyboard, the cord to Jordan’s drum machine, his swimming trunks from his pre-college summer as a lifeguard and a partially used tube of sunscreen. He held up each item with his mouth downturned and tears in his eyes. The backpack with all its contents looked as though it was just waiting for Jordan to return and hoist it over his shoulder.

I cried as I was transported back to the summer before his freshman year in college. I remembered so vividly all the times he took the keyboard and drum machine to his friend Matt’s house so they could compose music and “make beats.” I could hear his voice telling me where he was going and how long he’d be gone just by looking at the backpack. I sat on the stairs wailing, wanting to have my child back. Mark held the backpack and headed toward the garbage with the swimming trunks and backpack. I cried out, “No, I want to keep it. It’s his backpack.” Mark handed me the swimming trunks so I could wash them and put the backpack on a shelf in the storage room. He kept his head down, working as I sat on the steps with my mother two steps below my sister and me two steps behind me. I cried and cried as they rubbed my knee and my shoulder.

As I sat there trying to regain my composure so I could keep working, I heard Mark let out a moan and looked up to find him crying. He’d stumbled across the Oakland Raider’s helmet which was as part of a football uniform he’d given Jordan as a Christmas gift when he was three. I knew he was thinking of all the times he and Jordan played football together and how many games they watched together.

Jordan's early version of hiking the ball

He bent over with his hands on his knees and wept, not wanting to be comforted, just to cry. I watched him as he wiped his eyes and took a deep breath calming himself. We were almost done with the room. We looked at each other knowing that our cleaning was also cleansing. That day we’d wept over the beautiful son we lost, but were comforted by the wonderful things of Jordan’s that we found.

As I headed upstairs to shower Mark told me he was going to see if the computer still worked. It didn’t get wet and he was ready to see what was on it. When he came upstairs he told me that there were lots of my files on the computer as well as Jordan’s. One file of Jordan’s that peaked his interest was entitled, “Memories.” He told me that he’d briefly looked at the first paragraph and then emailed the essay to me. I sat down with my laptop and opened up Jordan’s, “Memories.” It was an essay in four sections spanning ages 3 to 16. He began by talking about his earliest memory of staying over at his friend Travis’ house the night I went into labor with his brother. He went on to say that although the memories were fuzzy he remembered climbing up on the hospital bed where I held his brother to get a good look at as he wrote, “the newest member of my family.” His “Memories” also included being told at the age of ten that I was pregnant with twins.  He remembered that he and Merrick made a special request for sisters.

I read and reread Jordan’s essay so grateful to have a son who catalogued so exquisitely for his siblings his wonder and excitement at their addition to our family. Jordan’s 21st birthday will be here in less than two weeks. We his family are struggling to accept that August 9th will come again without Jordan here with us. On his birthday, I know I’ll read Jordan’s “Memories” essay again and be so grateful that a rainstorm and a flooded basement focused our attention on the amazing gifts he left for us.

Jordan's "declaration" on his bedroom wall of our old house

Family Visit

I have always known how fortunate I am to have a family that loves and cares for me. Every time I’ve been sick or had major surgery my mother, mother-in-law and sister have come to care for me. Their presence has allowed me to heal knowing that my family and household are being taken care of in a way that is nurturing and respectful. They are all hands-on caregivers, helping me dress, doing laundry, preparing meals, shuttling kids around, all the things they know I would do if able.

My sister Julie has also come when I’ve needed her simply by my asking. There was a time when we were both in college and I had just broken up with my boyfriend of two years. A dance that I thought I was going to attend with him was coming up and he was bringing his new girlfriend. My pride made me determined to attend the dance, but I needed back up. All of my friends were attending with dates and I didn’t want to be an add-on to their evenings. Julie took the bus from Boston to Providence and came to the dance with me. She understood without explanation why I needed her there. Going to the dance was about proving to myself that I wasn’t going to allow anyone to make me feel that I didn’t deserve to be present. Just having her there allowed me to move past my self-consciousness of feeling alone. It also allowed me to sneak glances at the girlfriend while proving to myself that the world didn’t end because of the break-up. A problem that at the time seemed so monumental. Thank God for youthful ignorance and invincibility.

Julie at age 2 and me at age 4

My past shows me that asking for help is something I do after much consideration. My “self” never allows me to slip too far before I reach out and ask for support. Right after Jordan died, as October and November came and went, Christmas was approaching and I had no idea how I was going to make it through the holiday season. Mark and I both said that if it were just the two of us we’d probably go someplace far from home and come back when the holidays were over. Our children however, looked to us to provide continuity and reassurance that our world would keep going. I knew I had to provide those things, but I didn’t know how I could with grief weighing so heavy within me.

The albatross that most exemplified my unyielding sorrow was my dining room table. It was cluttered with plastic ware and covered containers from the weeks after Jordan died. The dishes needed to be returned to those who had dropped off food at our house. The table also held the guest book from the Memorial Service as well as cards and letters of condolences mixed in with mail Mark and I hadn’t been able to sort through. There were two large poster boards leaning against the wall in the dining room that we’d displayed at the Memorial service. They held pictures of Jordan and messages family and friends wrote on them after the Memorial service. When I would pass through the dining room I would usually avert my eyes not able to take in what the table represented. Occasionally I would sit in one of the chairs and pick up a pile of cards and letters attempting to sort through them. I would sit and stare for a few moments as I felt myself becoming agitated. I would sigh heavily and shake my head as I left the room. I couldn’t do it. I was overwhelmed by all the reminders of loss that occupied the table yet I couldn’t move past the vestiges of the Memorial Service. Clearing off the table meant moving on and accepting that we would have our first Christmas without Jordan. How could Christmas come to our house without Jordan? I was so conflicted. I wanted to be able to walk through my house without averting my head at what to me represented my failure to move on. My cluttered, filled with reminders that my son was gone, dining room table needed to be readied for the holidays and I couldn’t do it. When I asked my sister if she could come for a few days to help me she said simply, “Yes.” She understood without explanation my need for order. She didn’t try to tell me it didn’t matter what the table looked like. She knew me and knew what I needed to ease my mind. I knew she would help me handle the task in the way that would be gentle and spare me as much pain and anguish as possible.

Julie came for three days before Christmas and in that time made a spreadsheet of all the addresses Mark and I needed to send thank-you notes. She found boxes for all the cards and letters that I wanted to keep and put them in a closet where I could easily get to them, but they were out of sight. The day that she left, like someone from a design show she brought up candles and other decorations from my basement and transformed my dining room into a place of beauty. A place I could walk through without trying not to see all the reminders of death that had been in the room. I hugged her tightly when she left saying, “Thank you” but meaning so much more. She took care of me without judgment.

I am again in a place where I feel so close to breaking. My sister asked me the other day how I was doing. I told her I was hanging on by the thinnest thread. With my simmering worry about Merrick being away for 6 weeks, Mark travelling frequently for work and my daughters needing me to help them navigate their grief I feel broken. . Weariness has set in; being caretaker and receptacle for my children’s grief as well as my own has taken all of my energy.

My mother and sister heard the weariness in my voice and their love for me is bringing them for a visit. They’re coming today. They’re coming to as my mother said, “Lay eyes on me and take care of me for a few days.” They made the decision to miss our 52nd annual family reunion, even thought they’ve paid for all the events. I had my moments of guilt. I didn’t want them to miss seeing all of our relatives and my mother presiding over our family meeting. I told Mama I’d be okay even though the conversations she’d had with me in the last few days indicated otherwise. Mama simply said to me, “I’m doing what my instincts tell me to do.” She then asked me was there anything she could bring me? Through tears all I said was, “I just want you to cook for me and take care of me.”  Relief surged through me as I felt the weight of caretaker being eased by my mother and sister.

My mother and sister are coming today to embrace and love my family. My mother will cook all our favorite foods. As I rest in my room with vigilance abating I know I will hear the sounds of my daughters playing endless games of Uno with their aunt and “Oma”. They will laugh louder and longer than they have in a long time. Mama and Julie will sit with me on my front porch and listen without judgment or advice as I unburden myself, letting them in on how grief is working within me as Jordan’s 21st birthday approaches. They are coming to take care of me and I’ve never been more grateful. Just knowing that I can let my guard down for a little while and rest because they are here is my blessing.

Mama and I when I lived in L.A.

Let It Be Me

Being diagnosed with lupus(www.lupus.org) at the age of 23 turned my “carefree 20’s” into a time of tests, lifestyle changes and medications. It was also however, a time of graduate school, love, marriage and my sons. My husband Mark knew of my illness well before we were engaged. In my attempt at full disclosure to whom he was marrying, I made sure he understood that I had an illness that I and now he would have to deal with for the rest of our lives. His only response to me was to quote a line from an Anita Baker song(\”Just Because\”) and tell me “it was a welcome sacrifice.” He loved me and anything that happened would be “our” problem.

Health issues have always been a part of my adult life. I’ve had numerous surgeries including the most traumatic one when I lived in Houston, TX. In 1995 I was told that an MRI showed a tumor on my spinal cord. My doctor at the time came into the exam room, looked at me and quietly said, “It’s not good news.” During the week between diagnosis and surgery the doctors had no doubt that the MRI scan showed an astrocytoma- a cancerous tumor with a typical life expectancy of 5-7 years.

In the week before my surgery I obsessively added and re-added those 5-7 years to my 32 years of age. My counting was always done in terms of how old my boys would be when I died. I counted and recounted determined to live long enough so that my then 5 and almost 3-year old boys would have their own memories of me. If I couldn’t live to raise them I wanted them to at least be able to recall special moments we had together; to remember what it felt like to have me as their mother. I poured all of my prayer and positive energy into a full recovery. I wanted Mark and I to raise our sons together. The surgery was successful and showed that the surgeons initial diagnosis was incorrect. The tumor was benign. I’d been given my life back.

In 1999 after the birth of my twin daughters, complications arose and I awoke from general anesthesia to hear Mark whispering in my ear that the doctors had to perform emergency surgery to stop the bleeding that started during delivery. In a soothing but shaky voice he told me that I’d suffered tremendous blood loss. He quietly said, “We almost lost you.” I listened to his words and my first question to him was, “Are the babies alright?” He assured me our daughters were premature but doing well. I drifted back to sleep relieved that my children were okay. I was grateful to be alive for all of my children.

Every time I had doctor’s appointments or hospital stays I was keenly aware of the sick children that were there. Any moments of self-pity I had were erased as soon as I saw a sick child. I would silently pray for the child and their family and then be grateful that I was the one enduring the unknown with painful tests and hospital stays. If it had to be someone in my family that was sick, I wanted it to be me. I felt that I had an unspoken pact with God that any suffering to befall my family should come to me.

I never shared my feelings about my pact with anyone. I held it close as my way of keeping my children from harm. Like most parents I wanted my children protected and free from as much danger and pain as possible. Even those times when I was faced with death, I knew should anything happen to me, I had no doubt that Mark would love and care for our children. My silent pact boiled down to its essence simply put was, “let it be me. “

I know how foolish, superstitious and naïve I was to believe that I could have a contract with God that included an immunity clause for my children.  It was still the deal that I wanted. I was to be the sponge that dealt with pain, my children would be spared. Intellectually I knew every time I whispered,” I glad it’s me and not the kids,” that I was operating under an illusion of control. There are no deals with God and he doesn’t offer immunity clauses. The fierceness of my Mother Love however, prevailed over logic and reason. Time and time again I truly believed that I was cocooning my children from harm. “Let it be me.”

Then the illusion that was my pact shattered. Our phone rings late at night and two police officers come to our door telling us the words no parent wants to hear. Our son was dead. Jordan was killed in a car accident. He was gone and all of the notions I had about my accumulated pain and suffering being the buffer that would provide my family some immunity from further tragedy was nullified. Even in my haze of shock and grief I felt so stupid. There are no bargains or immunity clauses. All I had to do was look around to see all the tragedy in the world to know that my family is not exempt because I made a one-sided deal with God.

My son is gone. Since Jordan’s death I struggle not to veer to the extreme and feel that my children will never truly be safe.  I still have my moments, my days when the thought heaviest on my mind is, “Let it be me.” I work so hard to stay sane and not slip too far into darkness and depression. Jordan’s life held virtue, humor, caring and so much light. Each day I make a choice to keep going for my family and for me. The future can’t be predicted. I can’t mystically shelter my children from all harm. The shock of loss has slowed my acceptance of the fact that complete protection is an illusion-even if it is fueled by the fiercest love. My vigilance towards my children is still strong. But a parallel vigilance is burgeoning. It still whispers, “let it be me” but the meaning has shifted. Let it be me who remembers all aspects of my son’s too short life. Let it be me that honors in my own way the zeal Jordan had for life. Let it be me that loves life and hopes for joy to come in the morning.

Mother Skills

When Jordan was in 6th grade he read a biography of Grant Hill and Grant became one of his heroes. Jordan liked Grant Hill’s work ethic, his generosity and athleticism. In Jordan’s mind, he was the consummate student/athlete and Jordan wanted to emulate him both on and off the court. I liked the parts of the book that Jordan read to me which talked of Grant’s mother and her strictness. The book talked of how Grant was teased by his friends because he couldn’t do all of the things his friends did and had a stricter curfew. According to the book Grant’s friends called his mother the “Sergeant” when he was in junior high school and she was promoted to “General” by the time Grant was in high school. As Jordan talked about the book I told him I liked Grant’s mother’s style. I always told him to expect the same from me that Grant expected from his mother.

The times that Jordan especially as a teen pushed the limits on his curfew or started a sentence with, “But all of my friends can,” I had no problem being the strict mother within his group of friends. I always told Jordan that as he got older he would be allowed greater freedom and responsibility.  I would sometimes remind him of Grant Hill by saying, “It worked for Grant Hill, and it can work for you too.” He would roll his eyes and storm off but I felt comfortable in trusting my instincts for my children’s futures.

I don’t trust my mother radar anymore. Losing Jordan without warning when I thought he was safe has altered my trust of my instincts. I ask myself all the time, “Why didn’t I know he was going to die? I could have stopped it from happening. Why didn’t I know?”

Grief colors every part of my world and I’m not the same person I was before October 12th, 2008. I have declared repeatedly that I will always be the mother of four. While I grieve the loss of my oldest child, my three living, learning, playing and mourning children need their mother. There are days when I’m here for them, and I’m not all at the same time. Numbness still lurks at the edges, and sometimes seeps in to share a place inside of me with grief. Guilt has overtaken me many times as well. Especially times when I realize that I forgot to check over a homework packet for my 10- year old twin daughters, or that my 17- year old son had a test and I didn’t quiz him, the way I used too before Jordan died.

For the first time since I’ve been a mother, I forgot about Easter baskets. Seven o’clock at night on the Saturday before Easter and the notion of our usual traditions hadn’t crossed my mind. I was exhausted from our spring break vacation. The suitcases lay in Jordan’s room still packed. Lupus had taken any energy I would normally have away. I was in the middle of a flare and was having trouble understanding how to make room for my chronic illness when my chronic grief was also flaring. Thoughts of college basketball, Easter Sunday, Spring break without Jordan were all swirling around in my head. How dare my body also betray me? I felt as if the marrow has been sucked from my bones. Rest is the only real remedy for fatigue that takes a stranglehold on my life but guilt at feeling neglectful wouldn’t let me rest.

I tell myself that being forgetful and not having the same attention to details as I had before losing Jordan is expected. My self-critic however is harsh and adds more doubt to whether I’ll trust my maternal instincts again. Even as I try to reprogram my instincts, sorrow clouds my judgment and makes me doubt my decision-making abilities. I was in Walgreen’s with my daughters the other day and stood chatting with a friend as my daughters perused the magazine section. As my girls came over to me I saw a lump behind the ear of one of them. How had I missed a marble sized lump? I finished up my conversation with my friend but my mind was already calling the doctor to schedule an appointment. I have a veneer of calm but inside of me a panicked voice is saying, “Please don’t let it be anything serious. Her gland is swollen and she doesn’t have any other symptoms. What if she has cancer?” When we see the doctor the next day, she assures us it’s nothing serious, just as I had assured my daughter the night before. She asks my daughter to wait out in the waiting room so that she can talk with me for a minute.

Marian, our family physician, and I have been friends for a long time. She looks at me and says, “You thought it was cancer didn’t you?” With tear-filled eyes I shake my head yes, not trusting my voice. She goes on to tell me that if she thought it was serious she would be running tests and scheduling biopsies. She knows that my greatest fear is that I’ll lose another child. Even as she tries to calm me by saying, “You’re not going to lose another child,” my vigilant part is whispering, “No one can tell you that.” I needed to hear her words though, as a counter-action for the fear that resides in my heart. I know living with the fear of losing another child occupying such a large part of me is not good for my family or me.

My vigilant part stays on high alert. When the girls walk the dog, when my son is late coming home, I tell myself everything is fine, but I don’t fully breathe again until I see them and hear their voices. Now with Merrick away for the summer what I thought was my most vigilant self has been pushed to a more extreme level. Nothing that happens with my kids feels routine. Taking my daughter to the doctor exposed how fully my greatest fear has taken hold inside me. I walk around attending to chores, errands and even fun with a wariness that is exhausting. I know I can’t continue living and behaving this way. I am consciously trying to regain my balance. It’s so hard to feel centered when at the edges grief, vigilance, anxiety and sorrow pull at me and demand attention.

Right now I’m reaching out to family and friends to help steady me as I relearn my balance, especially on the days when I sway so far from center that it feels like I can’t recover. Slowly ever so slowly I’m taking deep breaths in and exhaling fully. I’m trying to learn to do the best I can without so much fear, breath-by- breath.